{"id":320,"date":"2023-03-17T20:19:38","date_gmt":"2023-03-17T20:19:38","guid":{"rendered":"https:\/\/bcchrmicro.wpengine.com\/?page_id=320"},"modified":"2025-12-23T19:34:30","modified_gmt":"2025-12-23T19:34:30","slug":"our-research","status":"publish","type":"page","link":"https:\/\/www.bcchr.ca\/navigationproject\/our-research\/","title":{"rendered":"Our Research"},"content":{"rendered":"<div  class=\"fndry-container fndry-responsive-bg fndry-container--full fndry-pt--md-3 fndry-pr--md-3 fndry-pl--md-3 fndry-pb--md-6 fndry-pr--sm-2 fndry-pl--sm-2 fndry-pb--sm-3\" style=\"--fndry-bg:var(--fndry-color-tertiaryLight)\">\n\t<div  class=\"fndry-container fndry-responsive-bg\">\n\t<div class=\"fndry-row fndry-align--center fndry-justify--sm-center fndry-justify--between\">\n\t<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--md-10 fndry-col--sm-12 fndry-pl--2 fndry-pb--5 fndry-pt--5 fndry-pt--md-2 fndry-pb--md-2 fndry-pr--md-0 fndry-pl--md-0\">\n\t<div class=\"breadcrumbs align fndry-pb--2 wp-block-bcn-breadcrumb-trail has-text-color has-background \" vocab=\"https:\/\/schema.org\/\" typeof=\"BreadcrumbList\">\n\t<span><\/span>\n\t<span property=\"itemListElement\" typeof=\"ListItem\"><a property=\"item\" typeof=\"WebPage\" title=\"Go to Neurodisability in children and young people: Integrated Navigational Support Program.\" href=\"https:\/\/www.bcchr.ca\/navigationproject\" class=\"home\" ><span property=\"name\">Neurodisability in children and young people: Integrated Navigational Support Program<\/span><\/a><meta property=\"position\" content=\"1\"><\/span><span property=\"itemListElement\" typeof=\"ListItem\"><a property=\"item\" typeof=\"WebPage\" title=\"Go to News &amp; Events.\" href=\"https:\/\/www.bcchr.ca\/navigationproject\/?page_id=1229\" class=\"post-root post post-post\" aria-current=\"page\"><span property=\"name\">News &amp; Events<\/span><\/a><meta property=\"position\" content=\"2\"><\/span><\/div>\n<h1 class=\"fndry-heading\">Our Research<\/h1><p class=\"fndry-paragraph fndry-text-bannerIntro20\">Learn more about our research.<\/p><\/div>\n<div  class=\"fndry-col fndry-responsive-bg fndry-col--5 fndry-col--md-12\">\n\t<figure  class=\"fndry-image\" style=\"--imageWidth:100%;--img-height-all:100%\" aria-labelledby=\"img-\">\n\t\t\t<\/figure>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n<div  class=\"fndry-container fndry-responsive-bg fndry-pt--5 fndry-pb--5 fndry-pr--md-1 fndry-pl--md-1 fndry-pt--md-3 fndry-pb--md-3 fndry-pt--sm-0 fndry-pb--sm-0 fndry-mt--sm-3 fndry-mb--sm-3\">\n\t<div class=\"fndry-row fndry-justify--center\">\n\t<div  class=\"fndry-col fndry-responsive-bg fndry-col--10 fndry-col--sm-12 fndry-col--md-12 fndry-pr--sm-2 fndry-pl--sm-2 fndry-pt--md-4 fndry-pb--md-4 fndry-pr--md-3 fndry-pl--md-3 fndry-d--flex fndry-flex--col fndry-align--start fndry-justify--center\">\n\t<h2 class=\"fndry-heading\">How Families of Children with Neurodevelopmental Disabilities Describe \u201cNavigational Services\u201d<\/h2><p class=\"fndry-paragraph\">Families of children and youth with neurodevelopmental disabilities often struggle to connect to fragmented services and supports. We are conducting a study to gain a better understanding of how families perceive services that connect them to community-based services, supports, and resources. In other words, we are interested in the concept of \u2018navigation\u2019 and related activities.<\/p><p class=\"fndry-paragraph\">Any family member who engages, or hopes to engage, with navigation or navigation-related services for their child(ren) with neurodevelopmental disabilities are invited to participate. Examples of such navigation might be:<\/p><ul  class=\"fndry-list fndry-d--flex fndry-flex--col\"><li\n\t class=\"fndry-list-item\">\n\tConnecting to assessment and developmental supports in the early years;<\/li>\n<li\n\t class=\"fndry-list-item\">\n\tNavigating transitions into and out of school;<\/li>\n<li\n\t class=\"fndry-list-item\">\n\tNavigation through healthcare settings, and connecting to appropriate healthcare providers;<\/li>\n<li\n\t class=\"fndry-list-item\">\n\tObtaining mental health support;<\/li>\n<li\n\t class=\"fndry-list-item\">\n\tFinding peer supports<\/li>\n<\/ul><p class=\"fndry-paragraph\">Participants to complete an online survey that will take 10-15 minutes. If you are interested in participating in this study, please&nbsp;<a href=\"https:\/\/ubc.ca1.qualtrics.com\/jfe\/form\/SV_6roi5V3FhbJA8AK\" target=\"_blank\" rel=\"noreferrer noopener\">click on this link<\/a>&nbsp;to access&nbsp;the survey. If you have any further questions, please contact:&nbsp;<a href=\"mailto:emily.gardiner@cw.bc.ca\" target=\"_blank\" rel=\"noreferrer noopener\">emily.gardiner@cw.bc.ca<\/a>.<\/p><h3 class=\"fndry-heading\">Navigation terminology \u2013 Scoping Review<\/h3><p class=\"fndry-paragraph\">There is significant confusion around the terminology used to describe the work of connecting families to services, and many stakeholders have shared with us that this has been a roadblock to advancing their work. In order to get a sense of what has been published in the area of \u2018navigation\u2019, specifically as related to children with disabilities, we conducted a&nbsp;<a href=\"https:\/\/bmchealthservres.biomedcentral.com\/articles\/10.1186\/s12913-022-07617-y\" target=\"_blank\" rel=\"noreferrer noopener\">scoping review<\/a>&nbsp;of the literature examining:&nbsp;<em>What&nbsp;<u>terminology<\/u>&nbsp;and what&nbsp;<u>descriptions<\/u>&nbsp;have been provided in the literature pertaining to navigation, and what related activities are there aimed at connecting children with disabilities and their families to community-based supports and services?<\/em><\/p><h3 class=\"fndry-heading\">Navigation Provider Survey<\/h3><p class=\"fndry-paragraph\">We also reached out to those who actually work with families in navigation-related roles, to hear from them about their work and what they call it. 174 participants from around British Columbia completed a brief, online survey in which we asked them to describe and share their reflections on the scope of navigational work, and what it is or should be termed.<\/p><h3 class=\"fndry-heading\">Summit Social Network Analysis<\/h3><p class=\"fndry-paragraph\">Currently in British Columbia, there are many organizations and groups (i.e., \u201centities\u201d) through which families of children and youth with disabilities seek services, supports, and resources within their communities. We have heard from various stakeholders that these entities are not well-connected and are often unaware of each other. As part of this research, registered attendees of the&nbsp;<em>BC Summit on Navigation for Children and Youth with Neurodevelopmental Differences, Disabilities, and Special Needs<\/em>&nbsp;are being asked to complete three brief surveys (pre- and post-Summit, and a 6-month follow-up) in order to help us better understand the nature and extent of existing connections, as well as the impact attendance at the&nbsp;<em>BC Navigation Summit<\/em>&nbsp;had on these relationships.<\/p><h3 class=\"fndry-heading\">What Have We Learned About &#8220;Navigation&#8221;?<\/h3><p class=\"fndry-paragraph\">Read our&nbsp;<a href=\"https:\/\/www.bcchr.ca\/sites\/default\/files\/group-integrated-navigational-support-program\/learning-from-the-research-supp-doc.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">Learning from the Research<\/a>&nbsp;information sheet.<\/p><p class=\"fndry-paragraph\">Click on the image below to view the larger graphic.&nbsp;<\/p><figure  class=\"fndry-image\" style=\"--imageWidth:100%\" aria-labelledby=\"img-1917\">\n\t<a href=\"https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/angela-chan-visual_sr-survey-and-summit_ppt_v3.pdf\" target=\"_blank\" class=\"fndry-image__link\"><img loading=\"lazy\" decoding=\"async\" width=\"1200\" height=\"927\" src=\"https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/angela-chan-visual_sr-survey-and-summit_ppt.png\" class=\"fndry-image__img\" aria-hidden=\"true\" role=\"presentation\" style=\"--borderRadius:0px;--objectFit:cover;--imagePosX:50%;--imagePosY:50%\" srcset=\"https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/angela-chan-visual_sr-survey-and-summit_ppt.png 1200w, https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/angela-chan-visual_sr-survey-and-summit_ppt-300x232.png 300w, https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/angela-chan-visual_sr-survey-and-summit_ppt-1024x791.png 1024w, https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/angela-chan-visual_sr-survey-and-summit_ppt-768x593.png 768w\" sizes=\"(max-width: 1200px) 100vw, 1200px\" \/>\t<\/a>\t<\/figure>\n<\/div>\n<\/div><\/div>\n\n\n<div  class=\"fndry-container fndry-responsive-bg fndry-container--full fndry-pt--md-3 fndry-pr--md-3 fndry-pl--md-3 fndry-pb--md-6 fndry-pr--sm-2 fndry-pl--sm-2\" style=\"--fndry-bg:var(--fndry-color-light)\">\n\t<div  class=\"fndry-container fndry-responsive-bg\">\n\t<div class=\"fndry-row fndry-align--center fndry-justify--sm-center fndry-justify--between\">\n\t<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--md-10 fndry-col--sm-12 fndry-pl--2 fndry-pb--5 fndry-pt--5 fndry-pt--md-2 fndry-pb--md-2\">\n\t<h2 class=\"fndry-heading\">Contact Us<\/h2><p class=\"fndry-paragraph fndry-text-intro18\">If you have questions about the Integrated Navigational Support Program, reach out.<\/p><a  href=\"mailto:amiller@cw.bc.ca\" rel=\"\" id=\"fndry-block-64b567d42514c\" class=\"fndry-btn fndry-btn-secondaryButtonWArrow\">Contact<\/a><\/div>\n<div  class=\"fndry-col fndry-responsive-bg fndry-col--5 fndry-d--md-none\">\n\t<figure  class=\"fndry-image fndry-mb--0\" style=\"--imageWidth:100%;--img-height-all:100%\" aria-labelledby=\"img-2118\">\n\t<img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"750\" src=\"https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/integrated-navigational-support-program-contact.jpg\" class=\"fndry-image__img\" aria-hidden=\"true\" role=\"presentation\" style=\"--borderRadius:0px;--objectFit:cover;--imagePosX:50%;--imagePosY:50%\" srcset=\"https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/integrated-navigational-support-program-contact.jpg 900w, https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/integrated-navigational-support-program-contact-300x250.jpg 300w, https:\/\/www.bcchr.ca\/navigationproject\/files\/2025\/12\/integrated-navigational-support-program-contact-768x640.jpg 768w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/>\t\t<\/figure>\n<\/div>\n<\/div><\/div>\n<\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":8,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_lmt_disableupdate":"no","_lmt_disable":"","inline_featured_image":false,"footnotes":"","fndry_alternate_title":"Alternate Title!"},"class_list":["post-320","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/pages\/320","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/comments?post=320"}],"version-history":[{"count":4,"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/pages\/320\/revisions"}],"predecessor-version":[{"id":2122,"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/pages\/320\/revisions\/2122"}],"wp:attachment":[{"href":"https:\/\/www.bcchr.ca\/navigationproject\/wp-json\/wp\/v2\/media?parent=320"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}