{"id":1227,"date":"2022-10-14T20:42:09","date_gmt":"2022-10-14T20:42:09","guid":{"rendered":"https:\/\/bcchrmicro.wpengine.com\/?page_id=2"},"modified":"2026-01-28T21:52:21","modified_gmt":"2026-01-28T21:52:21","slug":"home","status":"publish","type":"page","link":"https:\/\/www.bcchr.ca\/thehub\/","title":{"rendered":"Home"},"content":{"rendered":"<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-container--full fndry-pl--md-3 fndry-pr--md-3 fndry-pt--md-3 fndry-pt--4 fndry-pb--4 fndry-pr--sm-2 fndry-pl--sm-2\" id=\"page-banner-feature\" style=\"--fndry-bg:var(--fndry-color-tertiaryLight)\">\n\t<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border\">\n\t<div class=\"fndry-row fndry-justify--sm-center fndry-justify--end\">\n\t<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--md-12 fndry-pr--8 fndry-pt--6 fndry-pb--6 fndry-pl--2 fndry-pt--md-0 fndry-pb--md-3 fndry-pl--md-0 fndry-pr--md-0 fndry-pr--sm-0 fndry-pl--sm-0 fndry-d--flex fndry-flex--col fndry-align--start fndry-justify--center\">\n\t<h1 class=\"fndry-heading fndry-text-h1Feature48700Weight fndry-text-h1Feature48700Weight\">The Rare Disease Discovery Hub<\/h1><p class=\"fndry-paragraph\">A research investigation into understanding rare disease.<\/p><a  href=\"https:\/\/www.google.com\/\" rel=\"\" id=\"fndry-block-64aef9475af9d\" class=\"fndry-btn fndry-d--none fndry-btn-buttonArrowRight\"><\/a><\/div>\n<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--md-12\">\n\t<figure  class=\"fndry-image fndry-mb--2\" style=\"--imageWidth:100%;--img-height-all:100%\" aria-labelledby=\"img-2272\">\n\t<img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"750\" src=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-home.jpg\" class=\"fndry-image__img\" aria-hidden=\"true\" role=\"presentation\" style=\"--borderRadius:0px;--objectFit:cover;--imagePosX:50%;--imagePosY:50%\" srcset=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-home.jpg 900w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-home-300x250.jpg 300w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-home-768x640.jpg 768w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/figure>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-container--full fndry-pt--4 fndry-pb--3 fndry-pr--md-3 fndry-pl--md-3 fndry-pr--sm-2 fndry-pl--sm-2 fndry-mt--sm-3 fndry-mb--sm-3\" id=\"text-image-left-button\">\n\t<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border\">\n\t<div class=\"fndry-row\">\n\t<div  class=\"fndry-col fndry-responsive-bg gradient fndry-col--6 fndry-col--sm-12 fndry-col--md-12 fndry-pt--md-0 fndry-pb--md-0 fndry-pl--md-0 fndry-pr--md-0 fndry-pr--sm-0 fndry-pl--sm-0\">\n\t<figure  class=\"fndry-image fndry-mb--2\" style=\"--imageWidth:100%;--img-height-all:100%\" aria-labelledby=\"img-2365\">\n\t<img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"750\" src=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-about-us.jpg\" class=\"fndry-image__img\" aria-hidden=\"true\" role=\"presentation\" style=\"--borderRadius:0px;--objectFit:cover;--imagePosX:50%;--imagePosY:49%\" srcset=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-about-us.jpg 900w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-about-us-300x250.jpg 300w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-about-us-768x640.jpg 768w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/figure>\n<\/div>\n<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--sm-12 fndry-col--md-12 fndry-pb--5 fndry-pt--5 fndry-pr--3 fndry-pl--4 fndry-pr--sm-0 fndry-pl--sm-0 fndry-pt--md-3 fndry-pb--md-2 fndry-pr--md-0 fndry-pl--md-0 fndry-d--flex fndry-flex--col fndry-align--start fndry-justify--center\">\n\t<h2 class=\"fndry-heading fndry-heading--left\">Learn more about the Rare Disease Discovery Hub<\/h2><p class=\"fndry-paragraph fndry-paragraph--left feature-content\">The Rare Disease Discovery Hub is a multi-disciplinary, translational research program designed to help children affected by undiagnosed \u2018mystery\u2019 conditions by discovering the cause of their disease and then gaining an understanding of how the disease works.<\/p><div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-pr--md-0 fndry-pl--md-0 fndry-pl--0 fndry-pr--0\">\n\t<a  href=\"https:\/\/www.bcchr.ca\/thehub\/about-us\/\" rel=\"\" id=\"fndry-block-64afdb3c0da20\" class=\"fndry-btn fndry-mr--2 fndry-mb--2 fndry-btn-secondaryButton\">About US<\/a><a  href=\"https:\/\/www.bcchr.ca\/thehub\/about-us\/our-team\/\" rel=\"\" id=\"fndry-block-64afdb3c0da21\" class=\"fndry-btn fndry-btn-buttonArrowRight\">Our Team<\/a><\/div>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-container--full fndry-pt--3 fndry-pb--2 fndry-pr--md-3 fndry-pl--md-3 fndry-pb--md-4 fndry-pt--md-2 fndry-pr--sm-2 fndry-pl--sm-2\" style=\"--fndry-bg:var(--fndry-color-light)\">\n\t<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-pr--md-1 fndry-pl--md-1\">\n\t<div class=\"fndry-row mobile-col-rev fndry-justify--center\">\n\t<div  class=\"fndry-col fndry-responsive-bg feature-content fndry-col--6 fndry-col--sm-12 fndry-col--md-12 fndry-pt--4 fndry-pb--4 fndry-pr--3 fndry-pr--sm-0 fndry-pl--sm-0 fndry-pr--md-0 fndry-pb--md-3 fndry-pl--md-0 fndry-pt--md-3 fndry-d--flex fndry-flex--col fndry-align--start fndry-justify--center\">\n\t<h3 class=\"fndry-heading\">For Clinicians<\/h3><p class=\"fndry-paragraph\">The goal of the Hub is to facilitate more rare disease research at BC Children&#8217;s Hospital and BC Women&#8217;s Hospital + Health Centre.<\/p><a  href=\"https:\/\/www.bcchr.ca\/thehub\/for-clinicians\/\" rel=\"\" id=\"fndry-block-64afdc400da31\" class=\"fndry-btn fndry-btn-secondaryButton\">Clinicians<\/a><\/div>\n<div  class=\"fndry-col fndry-responsive-bg gradient fndry-col--6 fndry-col--sm-12 fndry-col--md-12 fndry-pt--md-0 fndry-pb--md-0 fndry-pl--md-0 fndry-pr--md-0 fndry-pl--sm-0 fndry-pr--sm-0\">\n\t<figure  class=\"fndry-image fndry-mb--2\" style=\"--imageWidth:100%;--img-height-all:100%\" aria-labelledby=\"img-2364\">\n\t<img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"750\" src=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-clinicians.jpg\" class=\"fndry-image__img\" aria-hidden=\"true\" role=\"presentation\" style=\"--borderRadius:0px;--objectFit:cover;--imagePosX:50%;--imagePosY:50%\" srcset=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-clinicians.jpg 900w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-clinicians-300x250.jpg 300w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-clinicians-768x640.jpg 768w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/figure>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-container--full fndry-pb--3 fndry-pr--md-3 fndry-pl--md-3 fndry-pt--md-2 fndry-pr--sm-2 fndry-pl--sm-2\" style=\"--fndry-bg:var(--fndry-color-light)\">\n\t<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-pr--md-0 fndry-pl--md-0\">\n\t<div class=\"fndry-row fndry-justify--center\">\n\t<div  class=\"fndry-col fndry-responsive-bg gradient fndry-col--6 fndry-col--sm-12 fndry-col--md-12 fndry-pt--md-2 fndry-pb--md-0 fndry-pl--md-1 fndry-pr--md-1 fndry-pr--sm-1 fndry-pl--sm-1\">\n\t<figure  class=\"fndry-image fndry-mb--2\" style=\"--imageWidth:100%;--img-height-all:100%\" aria-labelledby=\"img-2367\">\n\t<img loading=\"lazy\" decoding=\"async\" width=\"900\" height=\"750\" src=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-patients.jpg\" class=\"fndry-image__img\" aria-hidden=\"true\" role=\"presentation\" style=\"--borderRadius:0px;--objectFit:cover;--imagePosX:50%;--imagePosY:49%\" srcset=\"https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-patients.jpg 900w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-patients-300x250.jpg 300w, https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-patients-768x640.jpg 768w\" sizes=\"(max-width: 900px) 100vw, 900px\" \/><\/figure>\n<\/div>\n<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--sm-12 fndry-col--md-12 fndry-pr--3 fndry-pl--4 fndry-pt--4 fndry-pb--4 fndry-pr--sm-1 fndry-pl--sm-1 fndry-pt--md-4 fndry-pb--md-4 fndry-pr--md-1 fndry-pl--md-1 fndry-d--flex fndry-flex--col fndry-align--start fndry-justify--center\">\n\t<h3 class=\"fndry-heading\">For Patients<\/h3><p class=\"fndry-paragraph feature-content\">The Rare Disease Discovery Hub was designed to help support patients and families with undiagnosed rare diseases, as well as their medical teams, to access research testing when standard clinical tests have been unable to find a diagnosis.<\/p><div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-pl--0 fndry-pr--0\">\n\t<a  href=\"https:\/\/www.bcchr.ca\/thehub\/for-patients\/\" rel=\"\" id=\"fndry-block-64afdcc10da3e\" class=\"fndry-btn fndry-mr--2 fndry-btn-secondaryButton\">Patients<\/a><\/div>\n<\/div>\n<\/div><\/div>\n<\/div>\n\n\n<div  class=\"fndry-container fndry-responsive-bg fndry-responsive-border fndry-container--full\">\n\t<div class=\"fndry-row fndry-align--center fndry-justify--center\">\n\t<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--md-12 fndry-pl--6 fndry-pr--6 fndry-pt--8 fndry-pb--7 fndry-pr--md-4 fndry-pl--md-4 fndry-pl--sm-2 fndry-pr--sm-2 fndry-d--flex fndry-flex--col fndry-align--center fndry-justify--center\" style=\"--fndry-bg:linear-gradient(0deg, var(--fndry-color-secondary80) 50%, var(--fndry-color-secondary80) 50%) no-repeat center\/auto, url(https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/BC-Childrens-Hospital-Research-Institute-building-exterior.jpg) no-repeat center\/cover\">\n\t<h2 class=\"fndry-heading fndry-align-text--center\" style=\"color:var(--fndry-color-white)\">Contact Us<\/h2><p class=\"fndry-paragraph fndry-align-text--center fndry-text-intro20Type500Weight\" style=\"--color:var(--fndry-color-white)\">For all inquiries and referrals, please contact the Hub team. Referrals must be made by a health-care provider.<\/p><a  href=\"https:\/\/www.bcchr.ca\/thehub\/contact\/\" rel=\"\" id=\"fndry-block-64afe09a192dc\" class=\"fndry-btn fndry-mr--auto fndry-ml--auto fndry-btn-whiteButtonReverse\">Contact<\/a><\/div>\n<div  class=\"fndry-col fndry-responsive-bg fndry-col--6 fndry-col--md-12 fndry-pl--6 fndry-pr--6 fndry-pt--8 fndry-pb--7 fndry-pr--md-4 fndry-pl--md-4 fndry-pl--sm-2 fndry-pr--sm-2 fndry-d--flex fndry-flex--col fndry-align--center fndry-justify--center\" style=\"--fndry-bg:linear-gradient(180deg, var(--fndry-color-tertiary80) 50%, var(--fndry-color-tertiary80) 50%) center\/auto, url(https:\/\/www.bcchr.ca\/thehub\/files\/2026\/01\/rare-disease-discovery-hub-network-home.jpg) no-repeat center\/cover\">\n\t<h2 class=\"fndry-heading fndry-align-text--center\" style=\"color:var(--fndry-color-black)\">Our Infrastructure<\/h2><p class=\"fndry-paragraph fndry-align-text--center fndry-text-intro20Type500Weight\" style=\"--color:var(--fndry-color-black)\">Learn more about our unique infrastructure for individual patients and families with rare disorders in BC.<\/p><a  href=\"https:\/\/www.bcchr.ca\/thehub\/about-us\/our-infrastructure\/\" rel=\"\" id=\"fndry-block-64afe09a192e0\" class=\"fndry-btn fndry-mr--auto fndry-ml--auto fndry-btn-whiteButtonReverse\">Infrastructure<\/a><\/div>\n<\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_lmt_disableupdate":"","_lmt_disable":"","inline_featured_image":false,"footnotes":"","fndry_alternate_title":""},"class_list":["post-1227","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/pages\/1227","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/comments?post=1227"}],"version-history":[{"count":8,"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/pages\/1227\/revisions"}],"predecessor-version":[{"id":2370,"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/pages\/1227\/revisions\/2370"}],"wp:attachment":[{"href":"https:\/\/www.bcchr.ca\/thehub\/wp-json\/wp\/v2\/media?parent=1227"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}