Hal Siden

MD, MHSc

Investigator, BC Children's Hospital
Medical Director, Canuck Place Children's Hospice
Division Lead, Palliative Medicine, BC Children's Hospital, UBC Pediatrics

Pediatric palliative care and palliative medicine are my main areas of interest. Children and families living with life-threatening disease face a number of challenges. Pediatric palliative care is quite different than adult palliative care – there are different diseases, the trajectories are different, and the needs of children and families are different.

Longitudinal studies of children with life-threatening conditions, epidemiology of children with these condition, and outcomes of palliative care are areas of active inquiry.

I am also interested in pain assessment and pain management. Pain is not well understood in children who are cognitively normal, and is very poorly understood in children with neurological impairment. Finding new treatments and tools for assessing pain is important. I am specifically interested in some new and emerging areas in biological markers of pain in children. We are launching a new study of pathways to assess and treat pain/irritability in non-verbal children.

Academic Affiliations

  • Clinical Professor, Division of General Pediatrics, Department of Pediatrics, Faculty of Medicine, University of British Columbia
  • Research Theme: Brain, Behaviour & Development
  • Research Group(s): Neurodevelopmental and Neurological Disorders; Rare Diseases

Insights From the International Consensus on Neuro-Irritability in Pediatric Palliative Care

Neurology Clinical Practice

Anna Mercante and Harold Siden and Justin Nathaniel Baker and Danai Papadatou and Huda Abu-Saad Huijer and Boris Zernikow and Julie Hauer and Franca Benini and Qutaibah Alotaibi and Robert R. Althoff and Janelle Aragon and Eva Bergstrsser and Marco Bolognani and Katherine Boone and Melissa A. Brotman and Heather Brown and Kris Catrine and Maria Roberta Cilio and Finella Craig and Andrea J. Cuviello and Todd Dalberg and Russell Dale and Eleni Dana and Daniel Dickstein and Galen DiDomizio and Julia Downing and Ioannis Drikos and Carmen Fons and Monika Fhrer and Alexia Gerardi and Richard Hain and Lea L. Hornung and Naomi Katz and Katharina Kircanski and Kelly Komatz and Veronica Lambert and Philip Larkin and Esther J. Lee and Ellen Leibenluft and Shih-Ning Liaw and Ming Jin Lim and Sarah Lord and Daniel E. Lumsden and Sarah Luthy and Ricardo Martino-Alba and Andrea Martinuzzi and Glen Medellin and Alvin Moyer and Rima Nabbout and Reut Naim and Grace M.C. Ng and Margherita Nosadini and

DOI: 10.1212/CPJ.0000000000200525

10 / 2025

The Living Lab at Home: Feasibility and Acceptability of Multimodal In-Home Data Collection Among Youth Across the Developmental Spectrum

Journal of Developmental & Behavioral Pediatrics

Katelynn E. Boerner and Veronica Dudarev and Leora Pearl-Dowler and Marie-Noelle Wharton and Harold Siden and Liisa Holsti and Tim F. Oberlander

DOI: 10.1097/DBP.0000000000001319

11 / 2024

Exploring What Motivates Parents of Children Living With Medical Complexity to Participate in Research

Child: Care, Health and Development

Laesa Kim and Anne-Mette Hermansen and Karen Cook and Harold Siden

DOI: 10.1111/cch.13331

09 / 2024

Acute and Persistent Postoperative Functional Decline in Children with Severe Neurological Impairment: A Qualitative, Exploratory Study

Children

Holsti, L. and England, S. and Gibson, M. and McWilliams, B. and Hermansen, A.-M. and Siden, H.

DOI: 10.3390/children11030319

Removing barriers to accessing medical cannabis for paediatric patients

Paediatrics and Child Health (Canada)

Huntsman, R.J. and Elliott, J. and Lewis, E. and Moore-Hepburn, C. and Alcorn, J. and Mansell, H. and Appendino, J.P. and Blanger, R.E. and Corley, S. and Crooks, B. and Denny, A.M. and Finkelstein, Y. and Finley, A. and Fung, R. and Gilpin, A. and Litalien, C. and Jacobs, J. and Oberlander, T.F. and Palm, A. and Palm, J. and Polewicz, M. and Quinn, D. and Rassekh, S.R. and Repetski, A. and Rieder, M.J. and Robson-McKay, A. and Seifert, B. and Shackelford, A. and Siden, H. and Szafron, M. and T Jong, G. and Vaillancourt, R. and Kelly, L.E.

DOI: 10.1093/pch/pxac129

Librarian involvement in systematic reviews was associated with higher quality of reported search methods: a cross-sectional survey

Journal of Clinical Epidemiology

Pawliuk, C. and Cheng, S. and Zheng, A. and Siden, H.H.

DOI: 10.1016/j.jclinepi.2023.111237

Infants, children, youth and young adults with a serious illness in British Columbia: a population-based analysis using linked administrative data

CMAJ Open

Elisa Castro Noriega and Harold Siden and M. Ruth Lavergne

DOI: 10.9778/cmajo.20220181

11 / 2023

Family Perspectives on In-Home Multimodal Longitudinal Data Collection for Children Who Function Across the Developmental Spectrum

Journal of Developmental and Behavioral Pediatrics

Boerner, K.E. and Pearl-Dowler, L. and Holsti, L. and Wharton, M.-N. and Siden, H. and Oberlander, T.F.

DOI: 10.1097/DBP.0000000000001183

Librarian Involvement in Systematic Reviews and Quality of Reported Search Methods: A Cross-Sectional Survey of Authors from Vancouver, BC

SSRN

Pawliuk, C. and Cheng, S. and Zheng, A. and Siden, H.

DOI: 10.2139/ssrn.4541476

An agenda to develop Pediatric Palliative care programs to serve children with life-threatening and life-limiting conditions in the Gulf Cooperation Council countries

Palliative Care and Social Practice

Alotaibi, Q. and Siden, H.

DOI: 10.1177/26323524231201868

Intensity of end-of-life care among children with life-threatening conditions: a national population-based observational study

BMC Pediatrics

Widger, K. and Brennenstuhl, S. and Nelson, K.E. and Seow, H. and Rapoport, A. and Siden, H. and Vadeboncoeur, C. and Gupta, S. and Tanuseputro, P.

DOI: 10.1186/s12887-023-04186-9

Pain and symptom management in neurodevelopmental disorders: Sensory and nociceptive function/pain and symptom management

Neurodevelopmental Pediatrics: Genetic and Environmental Influences

Burkitt, C. and Genik, L. and Merbler, A. and Siden, H. and Oberlander, T.F. and Symons, F.

DOI: 10.1007/978-3-031-20792-1_43

Developing competencies for volunteer navigators to support caregivers of children living with medical complexity: a mixed-method e-Delphi study

Palliative Care and Social Practice

Thomas, R. and Pesut, B. and Siden, H. and Treschow, M. and Puurveen, G.

DOI: 10.1177/26323524231209060

Medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review

Child: Care, Health and Development

Sarah Fletcher and Colleen Pawliuk and Angie Ip and Linda Huh and S. Rod Rassekh and Tim F. Oberlander and Harold Siden

DOI: 10.1111/cch.12909

01 / 2022

Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain

Healthcare Quarterly

Birnie, K.A. and Killackey, T. and Backlin, G. and Gavin, F. and Harris, C. and Jordan, I. and Kim, L. and Marianayagam, J. and Swidrovich, J. and Lalonde, C. and Tunji-Ajayi, L. and Oberlander, T. and Kirby-Allen, M. and Lambert, S. and Siden, H. and Swidrovich, J. and Noel, M. and Lalloo, C. and Stinson, J.

DOI: 10.12927/hcq.2022.26778

Perspectives of pediatric oncologists and palliative care physicians on the therapeutic use of cannabis in children with cancer

Cancer Reports

Oberoi, S. and Protudjer, J.L.P. and Rapoport, A. and Rassekh, S.R. and Crooks, B. and Siden, H. and Decker, K. and Ananth, P. and Chapman, S. and Balneaves, L.G. and Vanan, M.I. and Kelly, L.E.

DOI: 10.1002/cnr2.1551

Neither the Devils Lettuce nor a Miracle Cure: The Use of Medical Cannabis in the Care of Children and Youth

Neuroethics

Gunning, M. and Rotenberg, A. and Anderson, J. and Balneaves, L.G. and Brace, T. and Crooks, B. and Hall, W. and Kelly, L.E. and Rassekh, S.R. and Rieder, M. and Virani, A. and Ware, M.A. and Zaslawski, Z. and Siden, H. and Illes, J.

DOI: 10.1007/s12152-022-09478-y

Evaluation of children with severe neurological impairment admitted to hospital with pain and irritability

BMC Pediatrics

Fishman, I. and Siden, H. and Vadeboncoeur, C.

DOI: 10.1186/s12887-022-03632-4

The Parental Experience of Caring for a Child With Pain and Irritability of Unknown Origin

Journal of Pain and Symptom Management

Rizakos, S. and Parmar, A. and Siden, H.H. and Orkin, J.

DOI: 10.1016/j.jpainsymman.2021.07.026

Rapid genome-wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences

Journal of Genetic Counseling

Caitlin E. Aldridge and Horacio Osiovich and Harold (Hal) Siden and Alison M. Elliott

DOI: 10.1002/jgc4.1353

04 / 2021

Improving the regulation of medical cannabis in Canada to better serve pediatric patients

CMAJ

Huntsman, R.J. and Kelly, L.E. and Alcorn, J. and Appendino, J.P. and Blanger, R.E. and Crooks, B. and Finkelstein, Y. and Gilpin, A. and Lewis, E. and Litalien, C. and Jacobs, J. and Moore-Hepburn, C. and Oberlander, T. and Rassekh, S.R. and Repetski, A.E. and Rieder, M.J. and Shackelford, A. and Siden, H. and Szafron, M. and T'Jong, G.W. and Vaillancourt, R.

DOI: 10.1503/cmaj.202169

Optimising the process for conducting scoping reviews

BMJ Evidence-Based Medicine

Pawliuk, C. and Brown, H.L. and Widger, K. and Dewan, T. and Hermansen, A.-M. and Grgoire, M.-C. and Steele, R. and Siden, H.

DOI: 10.1136/bmjebm-2020-111452

Symptoms, adverse events, and outcomes in the use of medicinal cannabis in children and adolescents with autism spectrum disorder: A scoping review protocol

JBI Evidence Synthesis

Fletcher, S. and Pawliuk, C. and Ip, A. and Oberlander, T. and Siden, H.

DOI: 10.11124/JBIES-20-00001

Charting the Territory: End-of-Life Trajectories for Children With Complex Neurological, Metabolic, and Chromosomal Conditions

Journal of Pain and Symptom Management

Bao, D. and Feichtinger, L. and Andrews, G. and Pawliuk, C. and Steele, R. and Siden, H.H.

DOI: 10.1016/j.jpainsymman.2020.08.033

Improving the regulation of medical cannabis in Canada to better serve pediatric patients,Amliorer la rglementation du cannabis mdical au Canada pour mieux servir les patients pdiatriques

CMAJ

Huntsman, R.J. and Kelly, L.E. and Alcorn, J. and Appendino, J.P. and Blanger, R.E. and Crooks, B. and Finkelstein, Y. and Gilpin, A. and Lewis, E. and Litalien, C. and Jacobs, J. and Moore-Hepburn, C. and Oberlander, T. and Rassekh, S.R. and Repetski, A.E. and Rieder, M.J. and Shackelford, A. and Siden, H. and Szafron, M. and T Jong, G.W. and Vaillancourt, R.

DOI: 10.1503/cmaj.202169-f

Family attitudes about and experiences with medical cannabis in children with cancer or epilepsy: an exploratory qualitative study

CMAJ open

Gibbard, M. and Mount, D. and Rassekh, S.R. and Siden, H.H.

DOI: 10.9778/cmajo.20200212

Efficacy and safety of paediatric medicinal cannabis use: A scoping review

Paediatrics and Child Health (Canada)

Pawliuk, C. and Chau, B. and Rassekh, S.R. and McKellar, T. and Siden, H.

DOI: 10.1093/pch/pxaa031

Scoping review of symptoms in children with rare, progressive, life-Threatening disorders

BMJ Supportive and Palliative Care

Pawliuk, C. and Widger, K. and Dewan, T. and Brander, G. and Brown, H.L. and Hermansen, A.-M. and Grgoire, M.-C. and Steele, R. and Siden, H.H.

DOI: 10.1136/bmjspcare-2019-001943

A novel classification system for research reporting in rare and progressive genetic conditions

Developmental Medicine and Child Neurology

van Karnebeek, C.D.M. and Beumer, D. and Pawliuk, C. and Goez, H. and Mostafavi, S. and Andrews, G. and Steele, R. and Siden, H.

DOI: 10.1111/dmcn.14180

Development and Implementation of a Survey to Assess Health-Care Providers Competency, Attitudes, and Knowledge About Perinatal Palliative Care

Journal of Palliative Care

Stenekes, S. and Penner, J.L. and Harlos, M. and Proulx, M.-C. and Shepherd, E. and Liben, S. and Thompson, G. and MacConnell, G. and Grgoire, M.-C. and Siden, H.H.

DOI: 10.1177/0825859718790627

Pediatric Palliative Care for Children with Progressive Non-Malignant Diseases

Children

Harold Siden

DOI: 10.3390/children5020028

02 / 2018

National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative Care

Journal of Palliative Medicine

Widger, K. and Wolfe, J. and Friedrichsdorf, S. and Pole, J.D. and Brennenstuhl, S. and Liben, S. and Greenberg, M. and Bouffet, E. and Siden, H. and Husain, A. and Whitlock, J.A. and Leyden, M. and Rapoport, A.

DOI: 10.1089/jpm.2017.0532

A de novo mosaic mutation in SPAST with two novel alternative alleles and chromosomal copy number variant in a boy with spastic paraplegia and autism spectrum disorder

European Journal of Medical Genetics

Matthews, A.M. and Tarailo-Graovac, M. and Price, E.M. and Blydt-Hansen, I. and Ghani, A. and Drgemller, B.I. and Robinson, W.P. and Ross, C.J. and Wasserman, W.W. and Siden, H. and van Karnebeek, C.D.

DOI: 10.1016/j.ejmg.2017.07.015

Charting the territory: Describing the functional abilities of children with progressive neurological conditions

Research in Developmental Disabilities

Tatla, S.K. and Holsti, L. and Andrews, G.S. and Feichtinger, L. and Steele, R. and Siden, H.

DOI: 10.1016/j.ridd.2017.10.001

Pain reporting and analgesia management in 270 children with a progressive neurologic, metabolic or chromosomally based condition with impairment of the central nervous system: Crosssectional, baseline results from an observational, longitudinal study

Journal of Pain Research

Friedrichsdorf, S.J. and Postier, A.C. and Andrews, G.S. and Hamre, K.E.S. and Steele, R. and Siden, H.

DOI: 10.2147/JPR.S138153

Best Practice in Provider/Parent Interaction

Qualitative Health Research

Davies, B. and Steele, R. and Krueger, G. and Albersheim, S. and Baird, J. and Bifirie, M. and Cadell, S. and Doane, G. and Garga, D. and Siden, H. and Strahlendorf, C. and Zhao, Y.

DOI: 10.1177/1049732316664712

Siblings of children with a complex chronic health condition: Maternal posttraumatic growth as a predictor of changes in child behavior problems

Journal of Pediatric Psychology

Stephenson, E. and DeLongis, A. and Steele, R. and Cadell, S. and Andrews, G.S. and Siden, H.

DOI: 10.1093/jpepsy/jsw053

Pediatric Palliative Care Program versus Usual Care and Healthcare Resource Utilization in British Columbia: A Matched-Pairs Cohort Study

Journal of Palliative Medicine

Tania Conte and Craig Mitton and Shannon Erdelyi and Negar Chavoshi and Harold Siden

DOI: 10.1089/jpm.2016.0177

11 / 2016

Shifting Focus in Pediatric Advance Care Planning: From Advance Directives to Family Engagement

Journal of Pain and Symptom Management

Harold (Hal) Siden and Negar Chavoshi

DOI: 10.1016/j.jpainsymman.2016.05.010

09 / 2016

Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer

BMC Palliative Care

Widger, K. and Friedrichsdorf, S. and Wolfe, J. and Liben, S. and Pole, J.D. and Bouffet, E. and Greenberg, M. and Husain, A. and Siden, H. and Whitlock, J.A. and Rapoport, A.

DOI: 10.1186/s12904-016-0085-8

Investing in Uncertainty: Young Adults with Life-Limiting Conditions Achieving Their Developmental Goals

Journal of Palliative Medicine

Cook, K.A. and Jack, S.M. and Siden, H. and Thabane, L. and Browne, G.

DOI: 10.1089/jpm.2015.0241

Charting the Territory: Children and families living with progressive life-threatening conditions

Paediatrics & Child Health

Harold Siden and Rose Steele

DOI: 10.1093/pch/20.3.139

04 / 2015

Introducing a lexicon of terms for paediatric palliative care

Paediatrics & Child Health

Sharron Spicer and Mary Ellen Macdonald and Dawn Davies and Christina Vadeboncoeur and Harold Siden

DOI: 10.1093/pch/20.3.155

04 / 2015

Crocker, et al.: Reducing barriers to parent participation in pediatric palliative care research

Palliative Medicine

Harold (Hal) Siden and Rose Steele and Susan Cadell

DOI: 10.1177/0269216315620945

Using Colors to Assess Pain in Toddlers: Validation of The Rainbow Pain Scale"A Proof-of-Principle Study

Journal of Pediatric Oncology Nursing

Mahon, P. and Holsti, L. and Siden, H. and Strahlendorf, C. and Turnham, L. and Giaschi, D.

DOI: 10.1177/1043454214555197

Impact of Research Participation on Parents of Seriously Ill Children

Journal of Palliative Medicine

Rose Steele and Susan Cadell and Harold Siden and Gail Andrews and Trudy Smit Quosai and Leanne Feichtinger

DOI: 10.1089/jpm.2013.0529

07 / 2014

Mortality Trends for Pediatric Life-Threatening Conditions

American Journal of Hospice and Palliative Medicine

Negar Chavoshi and Tanice Miller and Harold Siden

DOI: 10.1177/1049909114524476

03 / 2014

Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.

American Journal of Orthopsychiatry

Susan Cadell and David Hemsworth and Trudy Smit Quosai and Rose Steele and Elizabeth Davies and Stephen Liben and Lynn Straatman and Harold Siden

DOI: 10.1037/h0099384

03 / 2014

Charting the territory: Symptoms and functional assessment in children with progressive, non-curable conditions

Archives of Disease in Childhood

Steele, R. and Siden, H. and Cadell, S. and Davies, B. and Andrews, G. and Feichtinger, L. and Singh, M.

DOI: 10.1136/archdischild-2013-305246

Characteristics of a pediatric hospice palliative care program over 15 years

Pediatrics

Siden, H. and Chavoshi, N. and Harvey, B. and Parker, A. and Miller, T.

DOI: 10.1542/peds.2014-0381

An integrative approach to music therapy in pediatric palliative care

Journal of Palliative Care

Clark, B.A. and Siden, H. and Straatman, L.

Innovations in research with medically fragile populations: Using bulletin board focus groups

Qualitative Report

Cook, K. and Jack, S. and Siden, H. and Thabane, L. and Browne, G.

Resource Utilization among Individuals Dying of Pediatric Life-Threatening Diseases

Journal of Palliative Medicine

Negar Chavoshi and Tanice Miller and Harold Siden

DOI: 10.1089/jpm.2013.0110

10 / 2013

Physician variability in treating pain and irritability of unknown origin in children with severe neurological Impairment

Pain Research and Management

Siden, H.B. and Carleton, B.C. and Oberlander, T.F.

DOI: 10.1155/2013/193937

Up against the System: A Case Study of Young Adult Perspectives Transitioning from Pediatric Palliative Care

Nursing Research and Practice

Karen Cook and Harold Siden and Susan Jack and Lehana Thabane and Gina Browne

DOI: 10.1155/2013/286751

Pediatric palliative care in Canada

Pediatric Palliative Care: Global Perspectives

Widger, K. and Cadell, S. and Davies, B. and Siden, H. and Steele, R.

DOI: 10.1007/978-94-007-2570-6_17

Palliative Care for Children

Handbook of Palliative Care

Siden, H. and Van Breemen, C.

DOI: 10.1002/9781118426869.ch15

Research Considerations in Pediatric Palliative Care

Textbook of Interdisciplinary Pediatric Palliative Care

Davies, B. and Widger, K. and Steele, R. and Cadell, S. and Siden, H. and Straatman, L.

DOI: 10.1016/B978-1-4377-0262-0.00010-4

Pediatric palliative care patients: A prospective multicenter cohort study

Pediatrics

Feudtner, C. and Kang, T.I. and Hexem, K.R. and Friedrichsdorf, S.J. and Osenga, K. and Siden, H. and Friebert, S.E. and Hays, R.M. and Dussel, V. and Wolfe, J.

DOI: 10.1542/peds.2010-3225

Using network analysis to map the formal clinical reporting process in pediatric palliative care: a pilot study

BMC Health Services Research

Harold Siden and Karen Urbanoski

DOI: 10.1186/1472-6963-11-343

Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: Charting the territory

BMC Pediatrics

Siden, H. and Steele, R. and Brant, R. and Cadell, S. and Davies, B. and Straatman, L. and Widger, K. and Andrews, G.S.

DOI: 10.1186/1471-2431-10-67

The Madison clinic: Evaluation of a collaborative outpatient paediatric palliative care clinic

Paediatrics and Child Health

Siden, H. and Straatman, L. and Miller, T. and Ham, J.

Haloperidol as a Palliative Anti-Emetic in a Toddler: An Evidence Base Challenge

Journal of Pain and Symptom Management

Harold B. Siden

DOI: 10.1016/j.jpainsymman.2007.10.001

03 / 2008

Research priorities in pediatric palliative care: A delphi study

Journal of Palliative Care

Steele, R. and Bosma, H. and Johnston, M.F. and Cadell, S. and Davies, B. and Siden, H. and Straatman, L.

Pain management for children with a developmental disability in a primary care setting

Pain in Children: A Practical Guide for Primary Care

Siden, H. and Oberlander, T.F.

DOI: 10.1007/978-1-59745-476-6_4

Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study.

International journal of palliative nursing

Steele, R. and Derman, S. and Cadell, S. and Davies, B. and Siden, H. and Straatman, L.

DOI: 10.12968/ijpn.2008.14.5.29492

A report on location of death in paediatric palliative care between home, hospice and hospital

Palliative Medicine

Siden, H. and Miller, M. and Straatman, L. and Omesi, L. and Tucker, T. and Collins, J.J.

DOI: 10.1177/0269216308096527

Paediatric palliative care research in Canada: Development and progress of a new emerging team

Paediatrics and Child Health

Straatman, L. and Cadell, S. and Davies, B. and Siden, H. and Steele, R.

Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study.

International journal of palliative nursing

Steele, R. and Derman, S. and Cadell, S. and Davies, B. and Siden, H. and Straatman, L.

DOI: 10.12968/ijpn.2008.14.6.30024

The boy who refused an IV: a case report of subcutaneous clodronate for bone pain in a child with Ewing Sarcoma

Journal of Medical Case Reports

Harold Siden

DOI: 10.1186/1752-1947-1-7

03 / 2007

Post-surgical telehealth support for children and family care-givers

Journal of Telemedicine and Telecare

Lynne Young and Harold Siden and Stephen Tredwell

DOI: 10.1258/135763307779701149

01 / 2007

The Emerging Issue of Euthanasia

Archives of Pediatrics & Adolescent Medicine

Harold B. Siden

DOI: 10.1001/archpedi.159.9.887

09 / 2005

Challenges of teaching EBM

Canadian Medical Association Journal

H. Siden

DOI: 10.1503/cmaj.1041600

05 / 2005

Three patients and their drugs: A parallel case paper on paediatric opiate use and withdrawal

Paediatrics & Child Health

Harold B Siden and Kathleen Collin

DOI: 10.1093/pch/10.3.163

03 / 2005

High dose opioids in pediatric palliative care [1]

Journal of Pain and Symptom Management

Siden, H. and Nalewajek, G.

DOI: 10.1016/S0885-3924(03)00071-X

Telehealth: Connecting with Families to Promote Health and Healing

Journal of Family Nursing

Harold B. Siden and Lynne E. Young and Elizabeth Starr and Stephen J. Tredwell

DOI: 10.1177/107484070100700401

11 / 2001

Evaluating treatment outcome in an interdisciplinary pediatric pain service

Pain Research and Management

Bennett, S.M. and Chambers, C.T. and Bellows, D. and Court, C.A. and Huntsman, E. and Montgomery, C. and Oberlander, T.F. and Sheriff, M. and Siden, H.

DOI: 10.1155/2000/767058

A Qualitative Approach to Community and Provider Needs Assessment in a Telehealth Project

Telemedicine Journal

HAROLD B. SIDEN

DOI: 10.1089/tmj.1.1998.4.225

01 / 1998

CHLORAL HYDRATE VS. MIDAZOLAM FOR SEDATION DURING NEUROIMAGING. 778

Pediatric Research

James D'Agostino and Tom Terndrup and Harold Siden and Leo Hochauser

DOI: 10.1203/00006450-199604001-00800

04 / 1996

A report of four cases of acute, severe pulmonary hemorrhage in infancy and support with extracorporeal membrane oxygenation

Pediatric Pulmonology

Siden, H.B. and Sanders, G.M. and Moler, F.W.

DOI: 10.1002/ppul.1950180512

Early assessment of hemodynamic status after repair of tetralogy of Fallot: A comparison of 24 hour (intensive care unit) and 1 year postoperative data in 98 patients

The American Journal of Cardiology

Lang, P. and Chipman, C.W. and Siden, H. and Williams, R.G. and Norwood, W.I. and Castaneda, A.R.

DOI: 10.1016/0002-9149(82)91236-X

Current Projects

I am the principal investigator of a CIHR-funded network, PedPalASCNet (Accessible, Sustainable, Collaborative Network in Pediatric Palliative Care), that has been together since 2004. We are a national network of clinicians and researchers in Pediatric Palliative Care representing multiple disciplines. We use a model of 3 lenses or prisms – biomedical/clinical, psychosocial, and health services – to examine the experience of children and families with life-threatening diseases. More information can be found at: http://pediatricpalliative.com

Smaller projects include modeling complex care services; economic evaluation of pediatric hospice care; examining whether major surgery is associated with developmental milestone losses in children with severe neurological impairment; observing how families simultaneously engage in curative care and in comfort care; exploring the “meaning” of a genetic diagnosis for families who live with rare diseases.

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