Esther Lee

(she/her)
BSc, MD

Investigator, BC Children's Hospital
Pediatrician and Palliative Medicine Specialist, BC Children's Hospital

Children with medical complexity (CMC) have a chronic condition, neurological impairment and/or need technology to live, for example a breathing tube. They are small but growing in number and require much health care resources. They are supported by not just their family but many medical and community professionals. Communication between each bubble is important as well as planning for the future. Since they are a new group of people needing medical care, we need to work towards improving our health system as well making sure the CMC and their families have a voice and is part of the research and policy building process.

Academic Affiliations

  • Clinical Assistant Professor, , Department of Pediatrics, Faculty of Medicine, University of British Columbia
  • Research Theme: Evidence to Innovation
  • Research Group(s): Clinical Practice, Outcomes and Innovation

Contact Information

Location

4480 Oak Street, Vancouver, British Columbia, Canada, V6H 3V4

What Does Family-Centered Care Mean to You? A Qualitative Study Examining Perceptions of Mothers of Children With Medical Complexity

Journal of Family Nursing

Vanessa C. Fong and Jennifer Baumbusch and Koushambhi Khan and Esther Lee and Sacha Bailey and Karma MacDonald and Angela Clancy

DOI: 10.1177/10748407251393608

02 / 2026

Complex Care Needs a Team Approach: How Implementation of a Nurse Key-Worker Can Improve Care for Children With Medical Complexity and Their Families

Child Care Health and Development

Diaczun, T. and Kuan, M. and Crozier, T. and Nowak, A. and Vallance, C. and Lee, E.

DOI: 10.1111/cch.70093

Mapping Evidence and Constructing an Analytic Framework: An Umbrella Review Summarizing Primary Care Family Physicians Experiences With Clinical Integration

Annals of Family Medicine

Tseng, O.L. and Kim, G. and Ho, W.Y. and Lee, E.J. and Chang, H. and Lacaille, D. and Newton, C. and Vasarhelyi, K. and Poureslami, I. and Liow, E. and Mitton, C.

DOI: 10.1370/afm.240118

Weathering the Storm: Climate-Related Weather Event Experiences of Families of Children With Medical Complexity

Child Care Health and Development

Baumbusch, J. and Fong, V. and Lee, E. and Bandara, N. and Khan, K.

DOI: 10.1111/cch.70068

Doctors need electronic health records to work for us, not the other way around

British Columbia Medical Journal

08 / 2024

Communication in disasters to support families with children with medical complexity and special healthcare needs: a rapid scoping review

Frontiers in Public Health

Smith, N. and Donaldson, M. and Mitton, C. and Lee, E.

DOI: 10.3389/fpubh.2024.1229738

Moving beyond the hidden curriculum: Am I ableist?

British Columbia Medical Journal

So, J. and Vallance, C. and Lee, E.

Trends in Pediatric Palliative Care Research (TPPCR) 2023; Issue #6: Commentary on Wilkinson and Bertaud

Esther Lee

DOI: 10.31219/osf.io/fczm4

07 / 2023

Trauma-Informed Care Practices to Support Caregivers of Children with Severe Illness: Protocol for A Systematic Review

Research Square

Jibb, L.A. and Pomeroy, B.C. and Carriere, C. and Hashemi, E. and Zaffino, I. and Panesar, P. and Hwang, K. and Mitchell, M. and Hildenbrand, A. and Coleman, M. and Lee, E.J.

DOI: 10.21203/rs.3.rs-2507214

Primary care family physicians' experiences with clinical integration in qualitative and mixed reviews: A systematic review protocol

BMJ Open

Tseng, L.O. and Newton, C. and Hall, D. and Lee, E.J. and Chang, H. and Poureslami, I. and Vasarhelyi, K. and Lacaille, D. and Mitton, C.

DOI: 10.1136/bmjopen-2022-067576

Routine Elective Gastrojejunostomy Tube Changes Are Associated with Reduced Tube Complications and Radiation Exposure

Journal of Pediatric Gastroenterology and Nutrition

Hoang, T.T. and Maroo, S. and Lee, E.J. and Dewan, T. and Heran, M. and Avinashi, V.

DOI: 10.1097/MPG.0000000000003615

The impact of the COVID-19 pandemic on children with medical complexity

BMC Pediatrics

Diskin, C. and Buchanan, F. and Cohen, E. and Dewan, T. and Diaczun, T. and Gordon, M. and Lee, E. and MooreHepburn, C. and Major, N. and Orkin, J. and Patel, H. and Gill, P.J.

DOI: 10.1186/s12887-022-03549-y

Outcomes and factors influencing care decisions in life-threatening fetal and neonatal anomalies

Esther J. Lee and Simone Stenekes and Michael Harlos

DOI: 10.1101/2020.07.12.20152280

07 / 2020

The epidemiology of intermittent and chronic ataxia in children in Manitoba, Canada

Developmental Medicine & Child Neurology

Michael S Salman and Esther J Lee and Anindita Tjahjadi and Bernard N Chodirker

DOI: 10.1111/dmcn.12081

02 / 2013

The impact of an oral rehydration clinical pathway in a paediatric emergency department

Paediatrics & Child Health

Quynh Doan and Mercedes Chan and Vicki Leung and Esther Lee and Niranjan Kissoon

DOI: 10.1093/pch/15.8.503

10 / 2010

Upper Airway Drainage Study

Study with H. Perry (Resp) and T. Dewan (U of C). Retrospective study to see if positional therapy is effective for children with neurological impairment and secretion/aspiration concerns - in progress.

An Essential Subset of Good Outcome for Complex Care

Multisite study - Nora Fayed (PI-McMaster), Eyal Cohen, Joan Tranmer, Amal Khalil, Myla Moretti, Michael Sidra, Esther Lee, Francine Buchanan, Samantha Noyek, . The objective of this project, is to select which specific outcomes should be the basis of a learning system of wellbeing for pediatric complex care in Canada. Norman Saunders Complex Care Award $40,000 CAD.

Communication in disasters between health professionals and families with children with medical complexity or special healthcare needs

Knowledge synthesis review on this topic. Funded by Society for Patient Oriented Research (SPOR) Evidence Alliance and partnered with lab of Craig Mitton (UBC)- Neale Smith and Meghan Donaldson.

Intersection of Trauma and Grief: Parents caring for children with chronic complex conditions

Patient oriented research project with Beverley Pomeroy (FHA Department of Evaluation and Research Services and parent) and Mary Coleman (MSW, RSW, counsellor Canuck Place). 2020-onwards.

Use of Bedside Home Videos to Impact Patient and Provider Satisfaction with the Inpatient Care of Children with Medical Complexity

Prospective trial with Drs. Jennifer Carlisle and Tammie Dewan. Pending publication.

A review of 101 children with gastro-jejunal feeding tubes including their complications at BC Children's Hospital

Retrospective study. Co-I with Thomas Hoang (UBC), Sanjay Maroo (IR), Manraj Heran (IR), Tammie Dewan (U of C), Vishal Avinashi (GI). To be presented as a poster to Canadian Digestive Diseases Week (CDDW) 2021 conference.

Grants

An Essential Subset of Good Outcome for Complex Care. Co-I for a multisite study - Nora Fayed (PI-McMaster), Norman Saunders Complex Care Award $40,000 CAD.

Principal Investigator (PI) for “Improving support for staff affected by critical incidents in hospital” with Dr. Theresa Newlove - Awarded $49,650 by the Medical Staff Association (MSA) of Children’s Women’s Hospital of BC via Medical Allied Staff Engagement Society (MASES). 2017-2019.

Principle investigator for "Enhanced communication and care planning: Responding, supporting, and planning with family in the NICU". QI project with Dr. Emily Kieran and Camara Van Breemen (NP). Awarded $20000 by the Medical Staff Association (MSA) of Children’s Women’s Hospital of BC via Medical Allied Staff Engagement Society (MASES). 2020-2021.

Honours & Awards

UBC Sauder Physician Leadership Program (Cohort 14, 2020)

Hudson Scholar in Pediatric Medicine - BC Children's Hospital. 2 year scholarship for health improvement science learning and experience. 2020-2022.

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