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Susan Samuel
FRCPC, MD, MSc

Investigator and Pediatric Nephrologist, BC Children's Hospital

I am a pediatric nephrologist, clinician scientist, epidemiologist, and health services researcher with a primary appointment in the Department of Pediatrics, Division of Nephrology at the University of British Columbia and BC Children’s Hospital Research Institute. My research program is focused on improving care and outcomes of children with chronic health conditions, in particular those with kidney disease. We are studying a rare disease called nephrotic syndrome which causes severe swelling of the body due to protein leak from blood into urine. Our goal is to improve our understanding of cause of the disease and to develop better treatments. We are also studying how to improve transition to adult care for those with chronic illnesses in childhood, and continue to study ways to provide better support and resources during this vulnerable time.

Academic Affiliations

  • Professor, Division of Nephrology, Department of Pediatrics, Faculty of Medicine, University of British Columbia
  • Research Theme: Evidence to Innovation
  • Research Group(s): Clinical Practice, Outcomes and Innovation; Immunity in Health and Disease

Contact Information

Location

950 West 28th Avenue, Vancouver, British Columbia, Canada, V5Z 4H4

susan.samuel@ubc.ca

Patient and caregiver perspectives on treatment strategies and care priorities of childhood steroid-sensitive nephrotic syndrome: A qualitative study

BMJ Open

Okpere, A. and Samuel, S. and King-Shier, K. and Hamiwka, L. and Elliott, M.

DOI: 10.1136/bmjopen-2024-097602

Is Childhood IgA Nephropathy Different From Adult IgA Nephropathy? A Narrative Review

Canadian Journal of Kidney Health and Disease

Alladin-Karan, A. and Samuel, S.M. and Wade, A.W. and Ravani, P. and Grisaru, S. and Lam, N.N. and Bernie, K.A. and Quinn, R.R.

DOI: 10.1177/20543581251322571

Practice variation in the use of steroid-sparing therapies in childhood steroid-sensitive nephrotic syndrome: results from a prospective cohort study

Pediatric Nephrology

Aguilar-Gonz{\'a}lez, A. and Zardynezhad, A. and Morgan, C. and Dart, A. and Mammen, C. and Parekh, R.S. and Geier, P. and Benoit, G. and Filler, G. and Feber, J. and Tee, J. and Arora, S. and Noone, D. and Grisaru, S. and Chanchlani, R. and Okpere, A. and Samuel, S.

DOI: 10.1007/s00467-025-06853-8

Practice Variation in the Use of Steroid-sparing Therapies in Childhood Steroid Sensitive Nephrotic Syndrome: Results from a Prospective Cohort Study

Research Square

Aguilar-Gonz{\'a}lez, A. and Zardynezhad, A. and Morgan, C. and Dart, A. and Mammen, C. and Parekh, R. and Geier, P. and Benoit, G. and Filler, G. and Feber, J. and Tee, J. and Arora, S. and Noone, D. and Grisaru, S. and Chanchlani, R. and Okpere, A. and Samuel, S.

DOI: 10.21203/rs.3.rs-5723983/v1

Effectiveness of Patient Navigation during Transition to Adult Care: A Randomized Clinical Trial

JAMA Pediatrics

Samuel, S. and Punjwani, Z. and San Martin-Feeney, D. and Allemang, B. and Guilcher, G.M.T. and Lang, E. and Pacaud, D. and Pinzon, J. and Andrew, G. and Zwaigenbaum, L. and Perrott, C. and Andersen, J. and Hamiwka, L. and Nettel-Aguirre, A. and Klarenbach, S. and McBrien, K. and Scott, S.D. and Patton, M. and Samborn, S. and Pfister, K. and Ryan, L. and Dimitropoulos, G. and Mackie, A.S.

DOI: 10.1001/jamapediatrics.2024.6192

Management of IgA nephropathy in children: we need more evidence

Pediatric Nephrology

Vivarelli, M. and Samuel, S. and Coppo, R. and Nakanishi, K.

DOI: 10.1007/s00467-025-06720-6

Transition experiences of adolescents and young adults working with a patient navigator

Health Care Transitions

San Martin-Feeney, D. and Samborn, S. and Allemang, B. and Patton, M. and Punjwani, Z. and Pfister, K. and Ryan, L. and Guilcher, G.M.T. and Hamiwka, L. and Klarenbach, S. and Lang, E. and McBrien, K. and Nettel-Aguirre, A. and Pacaud, D. and Pinzon, J. and Scott, S.D. and Zwaigenbaum, L. and Perrott, C. and Andersen, J. and Andrew, G. and Mackie, A.S. and Samuel, S. and Dimitropoulos, G.

DOI: 10.1016/j.hctj.2024.100088

Patient, Parental, and Health Professional Perspectives on Growth in Children With CKD

American Journal of Kidney Diseases

Wu, J.G. and Guha, C. and Hughes, A. and Torrisi, L.G. and Craig, J.C. and Sinha, A. and Dart, A. and Eddy, A.A. and Bockenhauer, D. and Yap, H.-K. and Groothoff, J. and Alexander, S.I. and Furth, S.L. and Samuel, S. and Carter, S.A. and Walker, A. and Kausman, J. and Jaure, A.

DOI: 10.1053/j.ajkd.2024.06.016

IPNA clinical practice recommendations for the diagnosis and management of children with IgA nephropathy and IgA vasculitis nephritis

Pediatric Nephrology

Vivarelli, M. and Samuel, S. and Coppo, R. and Barratt, J. and Bonilla-Felix, M. and Haffner, D. and Gibson, K. and Haas, M. and Abdel-Hafez, M.A. and Adragna, M. and Brogan, P. and Kim, S. and Liu, I. and Liu, Z.-H. and Mantan, M. and Shima, Y. and Shimuzu, M. and Shen, Q. and Trimarchi, H. and Hahn, D. and Hodson, E. and Pfister, K. and Alladin, A. and Boyer, O. and Nakanishi, K.

DOI: 10.1007/s00467-024-06502-6

Autoantibodies targeting CRB2 and Nephrin correlate with extrafollicular B cells in idiopathic podocytopathies

Biorxiv

Al-Aubodah, T.-A. and Leclerc, S. and Aoudjit, L. and Samanta, R. and Mammen, C. and Dart, A. and Lapeyraque, A.-L. and Morgan, C. and Downie, M.L. and Yan, K. and Mori, S. and Samuel, S.M. and Piccirillo, C.A. and Takano, T.

DOI: 10.1101/2025.09.06.674608

Mental Health Hospitalizations in Canadian Children, Adolescents, and Young Adults Over the COVID-19 Pandemic

JAMA Network Open

Roumeliotis, N. and Carwana, M. and Trudeau, O. and Charland, K. and Zinszer, K. and Benigeri, M. and Diop, M. and Papenburg, J. and Ali, S. and Yaskina, M. and Wahi, G. and Forgeot d?Arc, B. and C{\^o}t{\'e}, S. and Sadarangani, M. and Basta, N.E. and Fontela, P.S. and Gantt, S. and Klassen, T.P. and Quach, C. and Doan, Q. and Ahira, S. and Allen, U. and Baerg, K. and Bale-Nick, M. and Banerjee, A. and Barton, M. and Beer, D. and Berthelot, S. and Bettinger, J. and Bhatt, M. and Buba, M. and Buchanan, F. and Bullard, J. and Burstein, B. and Burton, C. and Chanchlani, R. and Chass{\'e}, M. and Choong, K. and Constantin, E. and Constantinescu, C. and Costello, C. and Dewan, T. and Di Genova, T. and Drouin, O. and Dryden-Palmer, K. and Du Pont-Thibodeau, G. and Dugas, M.-A. and Dumont-Maurice, R. and Emeriaud, G. and Emsley, J. and Ferro, M. and Forbes, K. and Fortier, I. and Foster, J. and Foulds, J. and Freedman, S. and Freire, G. and Galanis, E. and Gill, P. and Gravel, J. and Gruenwoldt, E. and Guerra, G. and Guttman, A. and Hancock, B.J. and Harrison, R. and Holland, J. and Joffe, A. and Kakkar, F. and Kam, A. and Kellner, J.D. and Knisley, L. and Lacaze-Masmonteil, T. and Lalgudi Ganesan, S. and Langlois, M.-A. and Le Saux, N. and Lee, L. and Leifso, K. and Li, P. and Linares, A. and Mahant, S. and Marc, I. and Mater, A. and McNally, J. and Meckler, G. and Morris, S. and Mtaweh, H. and Murthy, S. and Muttalib, F. and Newhook, L.-A. and Nicoll, J. and Orr-Gaucher, N. and Pagano, J. and Pangilinan, A. and Pernica, J. and Poonai, N. and Portales-Casamar, E. and Porter, R. and Purewal, R. and Robeson, P. and Robinson, J. and Salvadori, M. and Samuel, S. and Scott, S. and Sehgal, A. and Shah, A. and Sotindjo, T. and Southward, C. and Stoesz, T. and Strang, R. and Suleman, S. and Szatmari, P. and Taheri, S. and Tam, J. and Thibeault, R. and Top, K. and Toulouse, K. and Tse, S.-M. and Wadhwa, A. and Wong, S. and Wright, B. and Yeung, R.

DOI: 10.1001/jamanetworkopen.2024.22833

What skills do adolescents and young adults desire as they prepare for adult health care?

Health Care Transitions

Patton, M. and Martin-Feeney, D.S. and Allemang, B. and Punjwani, Z. and Samborn, S. and Pfister, K. and Ryan, L. and Mackie, A.S. and Samuel, S. and Dimitropoulos, G.

DOI: 10.1016/j.hctj.2024.100049

Amplifying adolescent and emerging adult voices: Development of a pediatric-to-adult transition research advisory council

Health Care Transitions

Punjwani, Z. and Patton, M. and Allemang, B. and Chisholm, C. and Pabia, M. and Mooney, S. and Siska, P. and Ryan, L. and Martin-Feeney, D.S. and Pfister, K. and Mackie, A. and Dimitropoulos, G. and Samuel, S.

DOI: 10.1016/j.hctj.2024.100058

Validation of Patient-Reported Outcome Measure in Pediatric CKD (PRO-Kid)

Clinical Journal of the American Society of Nephrology

Matsuda-Abedini, M. and Zappitelli, M. and Widger, K. and Rapoport, A. and Dionne, J.M. and Chanchlani, R. and Samuel, S. and Davison, S.N. and Bei, K.F. and Wai Lai, V.K. and Dufault, B. and Dart, A.B.

DOI: 10.2215/CJN.0000000000000467

Role of primary care in enhancing continuity of care for adolescents and young adults with chronic kidney disease undergoing transition to adult health services

Pediatric Nephrology

Punjwani, Z. and Patton, M. and Alladin-Karan, A. and Samborn, S. and Samuel, S.

DOI: 10.1007/s00467-023-06140-4

Corticosteroid therapy for nephrotic syndrome in children

Cochrane Database of Systematic Reviews

Hahn, D. and Samuel, S.M. and Willis, N.S. and Craig, J.C. and Hodson, E.M.

DOI: 10.1002/14651858.CD001533.pub7

IPNA clinical practice recommendations for the diagnosis and management of children with steroid-sensitive nephrotic syndrome

Pediatric Nephrology

Trautmann, A. and Boyer, O. and Hodson, E. and Bagga, A. and Gipson, D.S. and Samuel, S. and Wetzels, J. and Alhasan, K. and Banerjee, S. and Bhimma, R. and Bonilla-Felix, M. and Cano, F. and Christian, M. and Hahn, D. and Kang, H.G. and Nakanishi, K. and Safouh, H. and Trachtman, H. and Xu, H. and Cook, W. and Vivarelli, M. and Haffner, D. and Bouts, A. and Dossier, C. and Emma, F. and Kemper, M. and Topaloglu, R. and Waters, A. and Thorsten Weber, L. and Zurowska, A. and Gibson, K.L. and Greenbaum, L. and Massengill, S. and Selewski, D. and Srivastava, T. and Wang, C.-S. and Wenderfer, S. and Johnstone, L. and Larkins, N. and Wong, W. and Alba, A.A. and Ha, T.S. and Mokham, M. and Zhong, X. and Hamada, R. and Iijima, K. and Ishikura, K. and Nozu, K. and Bresolin, N. and De Jesus Gonzalez, N. and Restrepo, J. and Anochie, I. and McCulloch, M.

DOI: 10.1007/s00467-022-05739-3

The extrafollicular B cell response is a hallmark of childhood idiopathic nephrotic syndrome.

bioRxiv

Al-Aubodah, T.-A. and Aoudjit, L. and Pascale, G. and Perinpanayagam, M.A. and Langlais, D. and Bitzan, M. and Samuel, S.M. and Piccirillo, C.A. and Takano, T.

DOI: 10.1101/2023.09.11.557079

Perspectives of Pediatric Nephrologists, Intensivists and Nurses Regarding AKI Management and Expected Outcomes

Canadian Journal of Kidney Health and Disease

Che, A. and D?Arienzo, D. and Dart, A. and Mammen, C. and Samuel, S. and Alexander, T. and Morgan, C. and Blydt-Hansen, T. and Fontela, P. and Guerra, G.G. and Chanchlani, R. and Wang, S. and Cockovski, V. and Jawa, N. and Lee, J. and Nunes, S. and Reynaud, S. and Zappitelli, M.

DOI: 10.1177/20543581231168088

The extrafollicular B cell response is a hallmark of childhood idiopathic nephrotic syndrome

Nature Communications

Al-Aubodah, T.-A. and Aoudjit, L. and Pascale, G. and Perinpanayagam, M.A. and Langlais, D. and Bitzan, M. and Samuel, S.M. and Piccirillo, C.A. and Takano, T.

DOI: 10.1038/s41467-023-43504-8

Walking on both sides of the fence: A qualitative exploration of the challenges and opportunities facing emergent clinician-scientists in child health

Journal of Evaluation in Clinical Practice

Pritchard, L. and Bright, K.S. and Walsh, C.M. and Samuel, S. and Li, Q.K.W. and Wollny, K. and Twilt, M. and Tomfohr-Madsen, L. and Pires, L. and Dimitropoulos, G.

DOI: 10.1111/jep.13719

Transition readiness of youth with co-occurring chronic health and mental health conditions: A mixed methods study

Health Expectations

Allemang, B. and Samuel, S. and Greer, K. and Schofield, K. and Pintson, K. and Patton, M. and Farias, M. and Sitter, K.C. and Patten, S.B. and Mackie, A.S. and Dimitropoulos, G.

DOI: 10.1111/hex.13821

Development of the Strengths, Skills, and Goals Matrix: a tool for facilitating strengths-based adolescent and young adult engagement in research

Research Involvement and Engagement

Allemang, B. and Patton, M. and Greer, K. and Pintson, K. and Farias, M. and Schofield, K. and Samuel, S. and Patten, S.B. and Sitter, K.C. and Dimitropoulos, G.

DOI: 10.1186/s40900-023-00502-w

Child and caregiver perspectives on access to psychosocial and educational support in pediatric chronic kidney disease: a focus group study

Pediatric Nephrology

Zhang, Y. and Gutman, T. and Tong, A. and Craig, J.C. and Sinha, A. and Dart, A. and Eddy, A.A. and Gipson, D.S. and Bockenhauer, D. and Yap, H.-K. and Groothoff, J. and Zappitelli, M. and J.A.Webb, N. and Alexander, S.I. and Furth, S. and Samuel, S. and Blydt-Hansen, T.D. and Dionne, J. and Michael, M. and Wenderfer, S.E. and Winkelmayer, W.C. and McTaggart, S. and Walker, A. and Zimmerman, C.T. and Ralph, A.F. and Ju, A. and James, L.J. and Hanson, C.S.

DOI: 10.1007/s00467-022-05551-z

They go hand in hand: a patient-oriented, qualitative descriptive study on the interconnectedness between chronic health and mental health conditions in transition-age youth

BMC Health Services Research

Allemang, B. and Samuel, S. and Pintson, K. and Patton, M. and Greer, K. and Farias, M. and Schofield, K. and Sitter, K.C. and Patten, S.B. and Mackie, A.S. and Dimitropoulos, G.

DOI: 10.1186/s12913-022-09002-1

Association of average daily corticosteroid dose with time to relapse in children with idiopathic nephrotic syndrome: Results from a longitudinal cohort study

Research Square

Chanchlani, R. and Noone, D. and Geier, P. and Benoit, G. and Rodriguez-Lopez, S. and Brobbey, A. and Perinpanayagam, M.A. and Nettel-Aguirre, A. and Samuel, S. and Parekh, R.

DOI: 10.21203/rs.3.rs-1854758/v1

Curricula, Teaching Methods, and Success Metrics of Clinician-Scientist Training Programs: A Scoping Review

Academic Medicine

Li, Q.K.W. and Wollny, K. and Twilt, M. and Walsh, C.M. and Bright, K. and Dimitropoulos, G. and Pires, L. and Pritchard, L. and Samuel, S. and Tomfohr-Madsen, L.

DOI: 10.1097/ACM.0000000000004764

Association between transition readiness and mental health comorbidity in youth with chronic health conditions

Journal of Pediatric Nursing

Allemang, B. and Dimitropoulos, G. and Patten, S.B. and Sitter, K.C. and Brobbey, A. and Mackie, A.S. and Samuel, S.

DOI: 10.1016/j.pedn.2022.09.012

Involving Patient Partners in the KRESCENT Peer Review: Intent, Process, Challenges, and Opportunities

Canadian Journal of Kidney Health and Disease

Fowler, E.A. and Bell, K. and Burns, K. and Chiazzese, A. and DeSerres, S.A. and Foster, B.J. and Hartwig, S. and Herrington, G. and James, M.T. and Jensen, V. and Jones, N. and Kidston, S. and Lemay, S. and Levin, A. and MacPhee, A. and McCutcheon, S. and Ravani, P. and Samuel, S. and Scholey, J. and Takano, T. and Tangri, N. and Verdin, N. and Alexander, R.T. and Clase, C.M.

DOI: 10.1177/20543581221136402

Primary care service use during adolescence and young adulthood Tertiary care cohort affected by chronic health conditions

Canadian Family Physician

Schraeder, K. and Nettel-Aguirre, A. and Mackie, A.S. and McBrien, K. and Barrett, O. and Dimitropoulos, G. and Samuel, S.

DOI: 10.46747/cfp.6805e151

Immunosuppressive therapy for IgA nephropathy in children

Cochrane Database of Systematic Reviews

Alladin, B.A. and Pfister, K. and Hodson, E.M. and Hahn, D. and Ravani, P. and Quinn, R.R. and Samuel, S.M.

DOI: 10.1002/14651858.CD015060

Equity, diversity and inclusion of pediatric clinician-scientists in Canada: a thematic analysis

CMAJ open

Dimitropoulos, G. and Bright, K.S. and Li, Q.K.W. and Wollny, K. and Twilt, M. and Walsh, C.M. and Pires, L. and Tomfohr-Madsen, L. and Samuel, S. and Pritchard, L.

DOI: 10.9778/cmajo.20220134

Community based Primary Care for Adolescents and Young Adults Transitioning From Pediatric Specialty Care: Results from a Scoping Review

Journal of Primary Care and Community Health

Schraeder, K. and Allemang, B. and Felske, A.N. and Scott, C.M. and McBrien, K.A. and Dimitropoulos, G. and Samuel, S.

DOI: 10.1177/21501319221084890

Perspectives of Clinicians on Shared Decision Making in Pediatric CKD: A Qualitative Study

American Journal of Kidney Diseases

Kerklaan, J. and Hanson, C.S. and Carter, S. and Tong, A. and Sinha, A. and Dart, A. and Eddy, A.A. and Guha, C. and Gipson, D.S. and Bockenhauer, D. and Hannan, E. and Yap, H.-K. and Groothoff, J. and Zappitelli, M. and Amir, N. and Alexander, S.I. and Furth, S.L. and Samuel, S. and Gutman, T. and Craig, J.C.

DOI: 10.1053/j.ajkd.2021.12.009

The Diagnostic Journey of Childhood Idiopathic Nephrotic Syndrome: Perspectives of Children and Their Caregivers

Canadian Journal of Kidney Health and Disease

Okpere, A. and Samuel, S. and King-Shier, K. and Hamiwka, L. and Elliott, M.J.

DOI: 10.1177/20543581221139025

Rituximab Use for the Treatment of Childhood Nephrotic Syndrome by Canadian Pediatric Nephrologists: A National Survey

Canadian Journal of Kidney Health and Disease

Meeuwisse, C. and Morgan, C.J. and Samuel, S. and Alexander, R.T. and Rodriguez-Lopez, S.

DOI: 10.1177/20543581221079959

Association of pediatric cardiac surgery-associated acute kidney injury with post-discharge healthcare utilization, mortality and kidney outcomes

Pediatric Nephrology

Nunes, S. and Hessey, E. and Dorais, M. and Perreault, S. and Jouvet, P. and Phan, V. and Lacroix, J. and Lafrance, J.-P. and Samuel, S. and Zappitelli, M.

DOI: 10.1007/s00467-021-04999-9

IPNA Clinical Practice Recommendations for the Diagnosis and Management of Children with Steroid-resistant Nephrotic Syndrome, IPNA -

Nephrology and Dialysis

Trautmann, A. and Vivarelli, M. and Samuel, S. and Gipson, D. and Sinha, A. and Schaefer, F. and Hui, N.K. and Boyer, O. and Saleem, M.A. and Feltran, L. and Mller-Deile, J. and Becker, J.U. and Cano, F. and Xu, H. and Lim, Y.N. and Smoyer, W. and Anochie, I. and Nakanishi, K. and Hodson, E. and Haffner, D.

DOI: 10.28996/2618-9801-2020-4-435-473

Training Programs for Fundamental and Clinician-Scientists: Balanced Outcomes for Graduates by Gender

Canadian Journal of Kidney Health and Disease

Rampersad, C. and Alexander, T. and Fowler, E. and Hartwig, S. and Levin, A. and Rosenblum, N.D. and Samuel, S. and Wiebe, C. and Ho, J.

DOI: 10.1177/20543581211033405

Characteristics Associated with Variation in Corticosteroid Exposure in Children with Steroid-Sensitive Nephrotic Syndrome: Results from a Canadian Longitudinal Study

Kidney360

Rodriguez-Lopez, S. and Chanchlani, R. and Dart, A.B. and Morgan, C.J. and Lapeyraque, A.-L. and Tee, J.B. and Brobbey, A. and Perinpanayagam, M.A. and Samuel, S. and Nettel-Aguirre, A.

DOI: 10.34067/KID.0002692021

Importance of clinical practice guidelines to practicing pediatric nephrologists and IPNA survey

Pediatric Nephrology

Hari, P. and Alhasan, K. and Bagga, A. and Bonilla-Felix, M. and Coccia, P.A. and Duzova, A. and Ha, I.-S. and Montini, G. and Nakanishi, K. and Samuel, S. and Xu, H. and Boyer, O. and Haffner, D.

DOI: 10.1007/s00467-021-05105-9

Strategies for improving primary care for adolescents and young adults transitioning from pediatric services: perspectives of Canadian primary health care professionals

Family Practice

Schraeder, K. and Dimitropoulos, G. and Allemang, B. and McBrien, K. and Samuel, S.

DOI: 10.1093/fampra/cmaa113

A web-based self-management support prototype for adults with chronic kidney disease (my kidneys my health): Co-design and usability testing

JMIR Formative Research

Donald, M. and Beanlands, H. and Straus, S.E. and Smekal, M. and Gil, S. and Elliott, M.J. and Herrington, G. and Harwood, L. and Waldvogel, B. and Delgado, M. and Sparkes, D. and Tong, A. and Grill, A. and Novak, M. and James, M.T. and Scott Brimble, K. and Samuel, S. and Tu, K. and Farragher, J. and Hemmelgarn, B.R.

DOI: 10.2196/22220

Primary care during the transition to adult care for adolescents involved with pediatric specialty services: a scoping review protocol

Systematic Reviews

Schraeder, K. and Allemang, B. and Scott, C. and McBrien, K. and Dimitropoulos, G. and Felske, A. and Samuel, S.

DOI: 10.1186/s13643-021-01593-w

Patient and caregiver perspectives on blood pressure in children with chronic kidney disease

Nephrology Dialysis Transplantation

Wu, J.G.-A. and Tong, A. and Evangelidis, N. and Manera, K.E. and Hanson, C.S. and Baumgart, A. and Amir, N. and Sinha, A. and Dart, A. and Eddy, A.A. and Guha, C. and Gipson, D.S. and Bockenhauer, D. and Yap, H.-K. and Groothoff, J. and Zappitelli, M. and Alexander, S.I. and Furth, S.L. and Samuel, S. and Carter, S.A. and Walker, A. and Kausman, J. and Martinez-Martin, D. and Gutman, T. and Craig, J.C.

DOI: 10.1093/ndt/gfab194

Acute kidney injury in critically ill children and 5-year hypertension

Pediatric Nephrology

Hessey, E. and Perreault, S. and Roy, L. and Dorais, M. and Samuel, S. and Phan, V. and Lafrance, J.-P. and Zappitelli, M.

DOI: 10.1007/s00467-020-04488-5

Perspectives from primary health care providers on their roles for supporting adolescents and young adults transitioning from pediatric services

BMC Family Practice

Schraeder, K. and Dimitropoulos, G. and McBrien, K. and Li, J.Y. and Samuel, S.

DOI: 10.1186/s12875-020-01189-8

Establishing core outcome domains in pediatric kidney disease: report of the Standardized Outcomes in Nephrology"Children and Adolescents (SONG-KIDS) consensus workshops

Kidney International

Hanson, C.S. and Craig, J.C. and Logeman, C. and Sinha, A. and Dart, A. and Eddy, A.A. and Guha, C. and Gipson, D.S. and Bockenhauer, D. and Yap, H.-K. and Groothoff, J. and Zappitelli, M. and Webb, N.J.A. and Alexander, S.I. and Furth, S.L. and Samuel, S. and Neu, A. and Viecelli, A.K. and Ju, A. and Sharma, A. and Au, E.H. and Desmond, H. and Shen, J.I. and Manera, K.E. and Azukaitis, K. and Dunn, L. and Carter, S.A. and Gutman, T. and Cho, Y. and Walker, A. and Francis, A. and Sanchez-Kazi, C. and Kausman, J. and Pearl, M. and Benador, N. and Sahney, S. and Tong, A. and Guha, A. and Solarin, A. and Platona, A. and Hamilton, A. and Woods-Barnard, A. and Karathanas, A. and Baumgart, A. and Fielding, A. and LePage, A. and Bernier-Jean, A. and Kelly, A. and Teixeira, A. and Matus, A. and Narva, A. and Wang, A.Y.-M. and Fielding, A. and Meza, A. and Fielding, A. and Teixeira-Pinto, A. and Bagga, A. and Jankauskiene, A. and Kelly, A. and Gillespie, B. and Sautenet, B. and Vogt, B. and Foster, B. and Warady, B. and Dixon, B. and Manns, B. and Hemmelgarn, B. and Bscardark, B. and Romeo, B. and Meza, C. and Brockett, C. and Prestidge, C. and Green, C. and Perkins, C. and Schmitt, C.P. and Fielding, C. and Settee, C. and Sumpton, D. and Meza, D. and Karathanas, D. and Harris, D. and Wheeler, D. and Hooper, D. and Geary, D. and Haffner, D. and Mekahli, D. and Drozdz, D. and Romeo, E. and Ku, E. and Urbina, E. and Levtchenko, E. and Balovlenkov, E. and Hodson, E. and Morales, E. and O'Lone, E. and Machuca, E. and Carlton, E. and Olver, E. and Morales, E. and Mirza, F. and Mackie, F. and Tentori, F. and Schaefer, F. and Higgins, G. and Deschenes, G. and Plunkett, G. and Yoder, G. and Wong, G. and Morales, G. and Germino, G. and Perkins, H. and Mitchell-Smith, H. and Coolican, H. and Xu, H. and Anochie, I. and Ha, I.-S. and Davis, I. and Liu, I. and Samaniego, I. and Machuca, J. and Machuca, J. and Kerklaan, J. and Brockett, J. and Norton, J. and Goebel, J. and Rao, J. and Machuca, J. and Mitchell-Smith, J. and Watson, J. and Gill, J. and Flynn, J.T. and Samuels, J. and Bacchetta, J. and Yoder, K. and Twombley, K. and McMichael, K.-A. and Ishikura, K. and Romeo, K. and Settee, K. and Van, K.L. and McMichael, L. and Trinh, L. and Greenbaum, L. and Sanchez, L. and Fielding, L. and Rees, L. and Lippincott, L. and Mejia-Saldivar, L. and Saldivar, L. and Guay-Woodford, L. and Samaniego, L. and Hamiwka, L. and Bell, L. and Barry, L. and Macauley, L. and Holmes, L. and Karathanas, M. and Mitchell-Smith, M. and Walker, M. and Benavides, M. and Tonelli, M. and Ferris, M. and Vivarelli, M. and Wolfenden, M. and Howell, M. and Christian, M. and Schreiber, M. and Moxey-Mims, M. and Leonard, M. and Karathanas, M. and Natatmadja, M. and Brockett, M. and Bonilla-Felix, M. and Atkinson, M. and Baum, M. and Rheault, M. and McCulloch, M. and Matsuda-Abedini, M. and Michael, M. and Khan, M. and Salih, M. and Carlton, M.A. and Plunkett, N. and Webb, N. and Scholes-Robertson, N. and Larkins, N. and Evangelidis, N. and Yoder, N. and Meza, N. and Olver, P. and Carlton, P. and Brophy, P. and Tugwell, P. and Cochat, P. and Mehrotra, R. and Wolfenden, R. and Gbadegesin, R. and Benavides, R. and Johnson, R. and Morales, R. and McGee, R. and Fish, R. and Gardos, R. and Pecoits-Filho, R. and Vargas, R. and Saldivar, R. and Coppo, R. and Shroff, R. and Raina, R. and Youssouf, S. and Crowe, S. and Anumudu, S. and Chan, S. and Baldacchino, S. and Wenderfer, S. and Wolfenden, S. and Carlton, S. and Sutton, S. and Murphy, S. and Teo, S. and Salih, S. and Carlton, S. and Pearson, S. and Khan, S. and Wilson, S. and Sharma, S. and Marks, S. and Cornish, S. and Goldstein, S. and Mendley, S. and Lippincott, S. and Charles, S. and Mitchell-Smith, T. and Harris, T. and Vetter, T. and Carlton, T. and Carlton, T. and Querfeld, U. and Saglimbene, V. and Charles, V. and van Biesen, W. and Winkelmayer, W. and Machuca, Y. and Salih, Y. and Anh, Y.H. and Perkins, Z. and Salih, Z.

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Developing Consensus-Based Outcome Domains for Trials in Children and Adolescents With CKD: An International Delphi Survey

American Journal of Kidney Diseases

Logeman, C. and Guha, C. and Howell, M. and Hanson, C.S. and Craig, J.C. and Samuel, S. and Zappitelli, M. and Matsuda-Abedini, M. and Dart, A. and Furth, S. and Eddy, A. and Groothoff, J. and Yap, H.-K. and Bockenhauer, D. and Sinha, A. and Alexander, S.I. and Goldstein, S.L. and Gipson, D.S. and Michael, M. and Walker, A. and Kausman, J. and Gaillard, S. and Bacchetta, J. and Rheault, M.N. and Warady, B.A. and Neu, A. and Christian, M. and McTaggart, S. and Liu, I. and Teo, S. and Sautenet, B. and Gutman, T. and Carter, S. and Teixeira-Pinto, A. and Tong, A.

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IPNA clinical practice recommendations for the diagnosis and management of children with steroid-resistant nephrotic syndrome

Pediatric Nephrology

Trautmann, A. and Vivarelli, M. and Samuel, S. and Gipson, D. and Sinha, A. and Schaefer, F. and Hui, N.K. and Boyer, O. and Saleem, M.A. and Feltran, L. and Mller-Deile, J. and Becker, J.U. and Cano, F. and Xu, H. and Lim, Y.N. and Smoyer, W. and Anochie, I. and Nakanishi, K. and Hodson, E. and Haffner, D.

DOI: 10.1007/s00467-020-04519-1

Pragmatic trial evaluating the effectiveness of a patient navigator to decrease emergency room utilisation in transition age youth with chronic conditions: the Transition Navigator Trial protocol

BMJ Open

Susan Samuel and Gina Dimitropoulos and Kyleigh Schraeder and Scott Klarenbach and Alberto Nettel-Aguirre and Greg Guilcher and Daniele Pacaud and Jorge Pinzon and Eddy Lang and Gail Andrew and Lonnie Zwaigenbaum and Shannon Scott and Kerry McBrien and Lorraine Hamiwka and Andrew Mackie

DOI: 10.1136/bmjopen-2019-034309

12 / 2019

The Canadian childhood nephrotic syndrome (CHILDNEPH) study: report on mid-study feasibility, recruitment and main measures

BMC Nephrology

Susan M. Samuel and Allison Dart and Guido Filler and Martin Bitzan and Maury Pinsk and Cherry Mammen and Alberto Nettel-Aguirre and Maneka A. Perinpanayagam and Tomoko Takano and Rahul Chanchlani and Michael Zappitelli

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12 / 2019

Preferences for a self-management e-health tool for patients with chronic kidney disease: results of a patient-oriented consensus workshop

CMAJ open

Donald, M. and Beanlands, H. and Straus, S. and Ronksley, P. and Tam-Tham, H. and Finlay, J. and Smekal, M. and Elliott, M.J. and Farragher, J. and Herrington, G. and Harwood, L. and Large, C.A. and Large, C.L. and Waldvogel, B. and Delgado, M.L. and Sparkes, D. and Tong, A. and Grill, A. and Novak, M. and James, M.T. and Brimble, K.S. and Samuel, S. and Tu, K. and Hemmelgarn, B.R.

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Acute kidney injury among paediatric emergency room admissions in a tertiary hospital in South West Nigeria: A cohort study

Clinical Kidney Journal

Ademola, A.D. and Asinobi, A.O. and Ekpe-Adewuyi, E. and Ayede, A.I. and Ajayi, S.O. and Raji, Y.R. and Salako, B.L. and James, M. and Zappitelli, M. and Samuel, S.M.

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A Validation Study of Administrative Health Care Data to Detect Acute Kidney Injury in the Pediatric Intensive Care Unit

Canadian Journal of Kidney Health and Disease

D?Arienzo, D. and Hessey, E. and Ali, R. and Perreault, S. and Samuel, S. and Roy, L. and Lacroix, J. and Jouvet, P. and Morissette, G. and Dorais, M. and Lafrance, J.-P. and Phan, V. and Pizzi, M. and Chanchlani, R. and Zappitelli, M.

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Identifying Important Outcomes for Young People With CKD and Their Caregivers: A Nominal Group Technique Study

American Journal of Kidney Diseases

Hanson, C.S. and Gutman, T. and Craig, J.C. and Bernays, S. and Raman, G. and Zhang, Y. and James, L.J. and Ralph, A.F. and Ju, A. and Manera, K.E. and Teixeira-Pinto, A. and Viecelli, A.K. and Alexander, S.I. and Blydt-Hansen, T.D. and Dionne, J. and McTaggart, S. and Michael, M. and Walker, A. and Carter, S. and Wenderfer, S.E. and Winkelmayer, W.C. and Bockenhauer, D. and Dart, A. and Eddy, A.A. and Furth, S.L. and Gipson, D.S. and Goldstein, S.L. and Groothoff, J. and Samuel, S. and Sinha, A. and Webb, N.J.A. and Yap, H.-K. and Zappitelli, M. and Currier, H. and Tong, A.

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Content and Quality of Websites for Patients With Chronic Kidney Disease: An Environmental Scan

Canadian Journal of Kidney Health and Disease

Smekal, M. and Gil, S. and Donald, M. and Beanlands, H. and Straus, S. and Herrington, G. and Sparkes, D. and Harwood, L. and Tong, A. and Grill, A. and Tu, K. and Waldvogel, B. and Large, C. and Large, C. and Novak, M. and James, M. and Elliott, M. and Delgado, M. and Brimble, S. and Samuel, S. and Hemmelgarn, B.R.

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Delays in diagnosis of nephrotic syndrome in children: A survey study

Paediatrics and Child Health (Canada)

Hollis, A. and Dart, A. and Morgan, C. and Mammen, C. and Zappitelli, M. and Chanchlani, R. and Samuel, S.

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Identifying Needs for Self-management Interventions for Adults With CKD and Their Caregivers: A Qualitative Study

American Journal of Kidney Diseases

Donald, M. and Beanlands, H. and Straus, S. and Ronksley, P. and Tam-Tham, H. and Finlay, J. and MacKay, J. and Elliott, M. and Herrington, G. and Harwood, L. and Large, C.A. and Large, C.L. and Waldvogel, B. and Sparkes, D. and Delgado, M. and Tong, A. and Grill, A. and Novak, M. and James, M.T. and Brimble, K.S. and Samuel, S. and Hemmelgarn, B.R.

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Health care stakeholder perspectives regarding the role of a patient navigator during transition to adult care

BMC Health Services Research

Dimitropoulos, G. and Morgan-Maver, E. and Allemang, B. and Schraeder, K. and Scott, S.D. and Pinzon, J. and Andrew, G. and Guilcher, G. and Hamiwka, L. and Lang, E. and McBrien, K. and Nettel-Aguirre, A. and Pacaud, D. and Zwaigenbaum, L. and Mackie, A. and Samuel, S.

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Identifying a retrospective cohort of adolescents with chronic health conditions from a paediatric hospital prior to transfer to adult care: The Calgary Transition Cohort

BMJ Open

Schraeder, K. and Nettel-Aguirre, A. and Mackie, A. and Barrett, O. and Johnson, D.W. and Ryan, A.R. and Dimitropoulos, G. and Samuel, S.

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Management of Shiga toxin producing Escherichia coli-infected children: A multi-national, multi-specialty survey

Journal of Paediatrics and Child Health

Freedman, S.B. and Grisaru, S. and Xie, J. and Samuel, S. and Dixon, A. and Plint, A.C. and Schnadower, D.

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Long-term mortality after acute kidney injury in the pediatric ICU

Hospital Pediatrics

Hessey, E. and Morissette, G. and Lacroix, J. and Perreault, S. and Samuel, S. and Dorais, M. and Jouvet, P. and Lafrance, J.-P. and Jacques, L. and Phan, V. and Palijan, A. and Pizzi, M. and Roy, L. and Zappitelli, M.

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Examining the Transition from Child to Adult Care in Chronic Kidney Disease: An Open Exploratory Approach

Nephrology nursing journal : journal of the American Nephrology Nurses' Association

Nicholas, D.B. and Kaufman, M. and Pinsk, M. and Samuel, S. and Hamiwka, L. and Molzahn, A.E.

Failed Removal of Indwelling Urinary Catheters in Patients With Acute Stroke: Incidence and Risk Factors

PM and R

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Kidney disease in hepatitis B surface antigen-positive children: experience from a centre in south-west Nigeria and a review of the Nigerian literature

Paediatrics and International Child Health

Asinobi, A.O. and Ademola, A.D. and Okolo, C.A. and Adepoju, A.A. and Samuel, S.M. and Hoy, W.E.

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Implementing core outcomes in kidney disease: report of the Standardized Outcomes in Nephrology (SONG) implementation workshop

Kidney International

Tong, A. and Manns, B. and Wang, A.Y.M. and Hemmelgarn, B. and Wheeler, D.C. and Gill, J. and Tugwell, P. and Pecoits-Filho, R. and Crowe, S. and Harris, T. and Van Biesen, W. and Winkelmayer, W.C. and Levin, A. and Thompson, A. and Perkovic, V. and Ju, A. and Gutman, T. and Bernier-Jean, A. and Viecelli, A.K. and O'Lone, E. and Shen, J. and Josephson, M.A. and Cho, Y. and Johnson, D.W. and Sautenet, B. and Tonelli, M. and Craig, J.C. and Sinha, A. and Ong, A. and Denny, A. and Dart, A. and Eddy, A. and Kelly, A. and Davenport, A. and Narva, A. and Sharma, A. and Warrens, A. and Chapman, A. and Teixeira-Pinto, A. and Murphy, B. and Padilla, B. and Canaud, B. and Pullin, B. and Schiller, B. and Robinson, B. and Hanson, C. and Hawley, C. and Logeman, C. and Lok, C. and Wanner, C. and Herzog, C. and Rutherford, C. and Ahn, C. and Sumpton, D. and Rosenbloom, D. and Harris, D. and Baron, D. and White, D. and Gipson, D. and Fouque, D. and Eilers, D. and Bockenhauer, D. and O'Donoghue, D. and Chen, D. and Dunning, D. and Brown, E. and Bavlovlenkov, E. and Mannon, E. and Poggio, E. and Chemla, E. and Dobbels, F. and Zannad, F. and Caskey, F. and Tentori, F. and Hurst, F. and Schaefer, F. and Wong, G. and Brunier, G. and Strippoli, G. and Rangan, G. and Knoll, G. and Obrador, G. and Feldman, H. and Coolican, H. and Yap, H.K. and Groothoff, J. and Sloand, J. and Tan, J. and Locke, J. and Perl, J. and Chapman, J. and Dong, J. and Malyszko, J. and Fox, J. and Dapueto, J. and Tze-Wah Kao, J. and Chow, K.M. and Manera, K. and Azukaitis, K. and Polkinghorne, K. and Fowler, K. and Van, K.L. and Budde, K. and Lentine, K. and Cromm, K. and Hooi, L.S. and James, L. and Dember, L. and Zuo, L. and Rostaing, L. and Lightstone, L. and Marson, L. and Hamiwka, L. and Krishnan, M. and Ruospo, M. and Unruh, M. and Wilkie, M. and Howell, M. and Dew, M.A. and Jardine, M. and West, M. and Zappitelli, M. and Germain, M. and Rocco, M. and Kleinpeter, M. and Jefferson, N. and Webb, N. and Evangelidis, N. and Gedney, N. and Duquette, P. and Kerr, P. and Rossignol, P. and Reese, P. and Blankestijn, P.J. and Roy-Chaudhury, P. and Patel, P. and Taylor, Q. and Perlman, R. and Oberbauer, R. and Mehrotra, R. and Vanholder, R. and Fluck, R. and McGee, R. and Quinn, R. and Lee, R. and Gansevoort, R. and Perrone, R. and Apata, R. and Mannon, R. and Youssouf, S. and Davison, S. and Bernays, S. and Naiker, S. and Teo, S. and Jowsey-Gregoire, S. and Carter, S. and Stuard, S. and Alexander, S. and McDonald, S. and Chadban, S. and Goldstein, S. and Furth, S. and Samuel, S. and Shafi, T. and Jafar, T. and Hiemstra, T. and Pruett, T. and Lee, T. and Vachharajani, T. and Jassal, V. and Krane, V. and Torres, V. and Jha, V. and Herrington, W. and Oh, Y. and Pei, Y. and Butt, Z.

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Healthcare utilization after acute kidney injury in the pediatric intensive care unit

Clinical Journal of the American Society of Nephrology

Hessey, E. and Morissette, G. and Lacroix, J. and Perreault, S. and Samuel, S. and Dorais, M. and Phan, V. and Jouvet, P. and Lafrance, J.-P. and Lelorier, J. and Palijan, A. and Pizzi, M. and Roy, L. and Zappitelli, M.

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Child and Parental Perspectives on Communication and Decision Making in Pediatric CKD: A Focus Group Study

American Journal of Kidney Diseases

Gutman, T. and Hanson, C.S. and Bernays, S. and Craig, J.C. and Sinha, A. and Dart, A. and Eddy, A.A. and Gipson, D.S. and Bockenhauer, D. and Yap, H.-K. and Groothoff, J. and Zappitelli, M. and Webb, N.J.A. and Alexander, S.I. and Goldstein, S.L. and Furth, S. and Samuel, S. and Blydt-Hansen, T. and Dionne, J. and Michael, M. and Wenderfer, S.E. and Winkelmayer, W.C. and Currier, H. and McTaggart, S. and Walker, A. and Ralph, A.F. and Ju, A. and James, L.J. and Carter, S. and Tong, A.

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Self-management interventions for adults with chronic kidney disease: A scoping review

BMJ Open

Donald, M. and Kahlon, B.K. and Beanlands, H. and Straus, S. and Ronksley, P. and Herrington, G. and Tong, A. and Grill, A. and Waldvogel, B. and Large, C.A. and Large, C.L. and Harwood, L. and Novak, M. and James, M.T. and Elliott, M. and Fernandez, N. and Brimble, S. and Samuel, S. and Hemmelgarn, B.R.

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Blood pressure in children with attention deficit/hyperactivity disorder

Paediatrics and Child Health (Canada)

Grisaru, S. and Yue, M. and Samuel, S.M. and Chaput, K.H. and Hamiwka, L.A.

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Iatrogenic dysnatremias in children with acute gastroenteritis in high-income countries: A systematic review

Frontiers in Pediatrics

Grisaru, S. and Xie, J. and Samuel, S. and Freedman, S.B.

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End-Stage Renal Disease Among Indigenous Populations in Canada

Chronic Kidney Disease in Disadvantaged Populations

Samuel, S. and Hemmelgarn, B. and Sood, M. and Tonelli, M.

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Associations between hydration status, intravenous fluid administration, and outcomes of patients infected with shiga toxin-producing escherichia coli a systematic review and meta-analysis

JAMA Pediatrics

Grisaru, S. and Xie, J. and Samuel, S. and Hartling, L. and Tarr, P.I. and Schnadower, D. and Freedman, S.B.

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Variation in estimated glomerular filtration rate at dialysis initiation in children

Pediatric Nephrology

Dart, A.B. and Zappitelli, M. and Sood, M.M. and Alexander, R.T. and Arora, S. and Erickson, R.L. and Kroeker, K. and Soo, A. and Manns, B.J. and Samuel, S.M.

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Range and Heterogeneity of Outcomes in Randomized Trials of Pediatric Chronic Kidney Disease

Journal of Pediatrics

Chong, L.S.H. and Sautenet, B. and Tong, A. and Hanson, C.S. and Samuel, S. and Zappitelli, M. and Dart, A. and Furth, S. and Eddy, A.A. and Groothoff, J. and Webb, N.J.A. and Yap, H.-K. and Bockenhauer, D. and Sinha, A. and Alexander, S.I. and Goldstein, S.L. and Gipson, D.S. and Raman, G. and Craig, J.C.

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Glomerular filtration rate trends during follow-up in children with steroid-sensitive nephrotic syndrome

Canadian Journal of Kidney Health and Disease

Alsaidi, S. and Wagner, D. and Grisaru, S. and Midgley, J. and Hamiwka, L. and Wade, A. and Nettel-Aguirre, A. and Samuel, S.

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Factors influencing practice variation in the management of nephrotic syndrome: a qualitative study of pediatric nephrology care providers

CMAJ open

Samuel, S.M. and Flynn, R. and Zappitelli, M. and Dart, A. and Parekh, R. and Pinsk, M. and Mammen, C. and Wade, A. and Scott, S.D.

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Setting new directions for research in childhood nephrotic syndrome: Results from a national workshop

Canadian Journal of Kidney Health and Disease

Samuel, S.M. and Takano, T. and Scott, S. and Benoit, G. and Bitzan, M. and Mammen, C. and Ryan, L. and Morgan, C.

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Perceptions of pediatric nephrologists regarding timing of dialysis initiation in children in Canada

Canadian Journal of Kidney Health and Disease

Saban, J.A. and Zappitelli, M. and Samuel, S.M. and Sood, M.M. and Alexander, R.T. and Arora, S. and Erickson, R.L. and Kroeker, K. and Manns, B.J. and Dart, A.B.

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Standardised Outcomes in Nephrology-Children and Adolescents (SONG-Kids): A protocol for establishing a core outcome set for children with chronic kidney disease

Trials

Tong, A. and Samuel, S. and Zappitelli, M. and Dart, A. and Furth, S. and Eddy, A. and Groothoff, J. and Webb, N.J.A. and Yap, H.-K. and Bockenhauer, D. and Sinha, A. and Alexander, S.I. and Goldstein, S.L. and Gipson, D.S. and Hanson, C.S. and Evangelidis, N. and Crowe, S. and Harris, T. and Hemmelgarn, B.R. and Manns, B. and Gill, J. and Tugwell, P. and Van Biesen, W. and Wheeler, D.C. and Winkelmayer, W.C. and Craig, J.C.

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The association between individual counselling and health behaviour change: The See Kidney Disease (SeeKD) targeted screening programme for chronic kidney disease

Canadian Journal of Kidney Health and Disease

Galbraith, L. and Hemmelgarn, B. and Manns, B. and Samuel, S. and Kappel, J. and Valk, N. and Ronksley, P.

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The see kidney disease targeted screening program for CKD

Clinical Journal of the American Society of Nephrology

Galbraith, L.E. and Ronksley, P.E. and Barnieh, L.J. and Kappel, J. and Manns, B.J. and Samuel, S.M. and Jun, M. and Weaver, R. and Valk, N. and Hemmelgarn, B.R.

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Establishing a Canadian national clinical trials network for kidney disease: Proceedings of a planning workshop

Canadian Journal of Kidney Health and Disease

Rigatto, C. and Walsh, M. and Zalunardo, N. and Clase, C.M. and Manns, B.J. and Madore, F. and Samuel, S.M. and Morgan, C.J. and Wolfs, W. and Suri, R.S.

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Statewide Administration of the CRAFFT Screening Tool: Highlighting the Spectrum of Substance Use

Substance Use and Misuse

Agley, J. and Gassman, R.A. and Jun, M. and Nowicke, C. and Samuel, S.

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Exploring physician specialist response rates to web-based surveys

BMC Medical Research Methodology

Cunningham, C.T. and Quan, H. and Hemmelgarn, B. and Noseworthy, T. and Beck, C.A. and Dixon, E. and Samuel, S. and Ghali, W.A. and Sykes, L.L. and Jett, N.

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Canadian Journal of Kidney Health and Disease: A unique launch of a unique journal

Canadian Journal of Kidney Health and Disease

Levin, A. and Clase, C.M. and Sood, M.M. and Dicks, E. and Fortin, M.-C. and Hartwig, S. and Holden, R. and Lafrance, J.-P. and Molzahn, A. and Rosenblum, N. and Samuel, S. and Soroka, S.

DOI: 10.1186/2054-3581-1-1

Organ donation and transplantation in Canada: Insights from the Canadian Organ Replacement Register

Canadian Journal of Kidney Health and Disease

Kim, S.J. and Fenton, S.S.A. and Kappel, J. and Moist, L.M. and Klarenbach, S.W. and Samuel, S.M. and Singer, L.G. and Kim, D.H. and Young, K. and Webster, G. and Wu, J. and Ivis, F. and de Sa, E. and Gill, J.S.

DOI: 10.1186/s40697-014-0031-8

The Canadian Childhood Nephrotic Syndrome (CHILDNEPH) project: Overview of design and methods

Canadian Journal of Kidney Health and Disease

Samuel, S. and Scott, S. and Morgan, C. and Dart, A. and Mammen, C. and Parekh, R. and Nettel-Aguirre, A. and Eddy, A. and Flynn, R. and Pinsk, M. and Wade, A. and Arora, S. and Benoit, G. and Bitzan, M. and Erickson, R. and Feber, J. and Filler, G. and Geier, P. and Girardin, C. and Grisaru, S. and Tee, J. and Kemp, K. and Zappitelli, M.

DOI: 10.1186/2054-3581-1-17

Canadian society of nephrology commentary on the 2012 KDIGO clinical practice guideline for glomerulonephritis: Management of glomerulonephritis in adults

American Journal of Kidney Diseases

Cybulsky, A.V. and Walsh, M. and Knoll, G. and Hladunewich, M. and Bargman, J. and Reich, H. and Humar, A. and Samuel, S. and Bitzan, M. and Zappitelli, M. and Dart, A. and Mammen, C. and Pinsk, M. and Muirhead, N.

DOI: 10.1053/j.ajkd.2013.12.001

The Canadian Society of Nephrology methods in developing and adapting clinical practice guidelines: A review

Canadian Journal of Kidney Health and Disease

Mustafa, R.A. and Levin, A. and Akbari, A. and Foster, B.J. and Zimmerman, D. and Nesrallah, G.E. and Knoll, G.A. and Rioux, J.-P. and Barton, J. and Ruzicka, M. and Muirhead, N. and Moist, L. and Pannu, N. and McFfarlane, P. and Klarenbach, S. and Samuel, S. and Clark, W.F. and Hemmelgarn, B.R.

DOI: 10.1186/2054-3581-1-5

Kidney stones and cardiovascular events: A cohort study

Clinical Journal of the American Society of Nephrology

Alexander, R.T. and Hemmelgarn, B.R. and Wiebe, N. and Bello, A. and Samuel, S. and Klarenbach, S.W. and Curhan, G.C. and Tonelli, M.

DOI: 10.2215/CJN.04960513

Association between First Nations ethnicity and progression to kidney failure by presence and severity of albuminuria

CMAJ. Canadian Medical Association Journal

Samuel, S.M. and Palacios-Derflingher, L. and Tonelli, M. and Manns, B. and Crowshoe, L. and Ahmed, S.B. and Jun, M. and Saad, N. and Hemmelgarn, B.R.

DOI: 10.1503/cmaj.130776

A longitudinal retrospective analysis of left ventricular mass in a cohort of pediatric kidney transplant recipients

Pediatric Transplantation

McLaughlin, R. and Hamiwka, L. and Samuel, S. and Fruitman, D. and Grisaru, S.

DOI: 10.1111/petr.12365

Avoidable hospitalizations in youth with kidney failure after transfer to or with only adult care

Pediatrics

Samuel, S.M. and Nettel-Aguirre, A. and Soo, A. and Hemmelgarn, B. and Tonelli, M. and Foster, B.

DOI: 10.1542/peds.2013-2345

Canadian society of nephrology commentary on the 2012 KDIGO clinical practice guideline for glomerulonephritis: Management of nephrotic syndrome in children

American Journal of Kidney Diseases

Samuel, S. and Bitzan, M. and Zappitelli, M. and Dart, A. and Mammen, C. and Pinsk, M. and Cybulsky, A.V. and Walsh, M. and Knoll, G. and Hladunewich, M. and Bargman, J. and Reich, H. and Humar, A. and Muirhead, N.

DOI: 10.1053/j.ajkd.2013.12.002

Substantial practice variation exists in the management of childhood nephrotic syndrome

Pediatric Nephrology

Samuel, S. and Morgan, C.J. and Bitzan, M. and Mammen, C. and Dart, A.B. and Manns, B.J. and Alexander, R.T. and Erickson, R.L. and Grisaru, S. and Wade, A.W. and Blydt-Hansen, T. and Feber, J. and Arora, S. and Licht, C. and Zappitelli, M.

DOI: 10.1007/s00467-013-2546-0

Tumefactive perivascular spaces mimicking cerebral edema in a patient with diabetic hyperglycemic hyperosmolar syndrome: A case report

Journal of Medical Case Reports

John, S. and Samuel, S. and Lakhan, S.E.

DOI: 10.1186/1752-1947-7-51

Contrast-induced acute kidney injury and risk of adverse clinical outcomes after coronary angiography: A systematic review and meta-analysis

Circulation: Cardiovascular Interventions

James, M.T. and Samuel, S.M. and Manning, M.A. and Tonelli, M. and Ghali, W.A. and Faris, P. and Knudtson, M.L. and Pannu, N. and Hemmelgarn, B.R.

DOI: 10.1161/CIRCINTERVENTIONS.112.974493

Incidence and causes of end-stage renal disease among Aboriginal children and young adults

CMAJ. Canadian Medical Association Journal

Samuel, S.M. and Foster, B.J. and Hemmelgarn, B.R. and Nettel-Aguirre, A. and Crowshoe, L. and Alexander, R.T. and Soo, A. and Tonelli, M.A.

DOI: 10.1503/cmaj.120427

Survival and transplantation outcomes of children less than 2 years of age with end-stage renal disease

Pediatric Nephrology

Alexander, R.T. and Foster, B.J. and Tonelli, M.A. and Soo, A. and Nettel-Aguirre, A. and Hemmelgarn, B.R. and Samuel, S.M.

DOI: 10.1007/s00467-012-2195-8

Kidney stones and kidney function loss: A cohort study

BMJ (Online)

Todd Alexander, R. and Hemmelgarn, B.R. and Wiebe, N. and Bello, A. and Morgan, C. and Samuel, S. and Klarenbach, S.W. and Curhan, G.C. and Tonelli, M.

DOI: 10.1136/bmj.e5287

Validating a case definition for chronic kidney disease using administrative data.

Nephrology, dialysis, transplantation : official publication of the European Dialysis and Transplant Association - European Renal Association

Ronksley, P.E. and Tonelli, M. and Quan, H. and Manns, B.J. and James, M.T. and Clement, F.M. and Samuel, S. and Quinn, R.R. and Ravani, P. and Brar, S.S. and Hemmelgarn, B.R. and Alberta Kidney Disease Network

DOI: 10.1093/ndt/gfr598

Association between residence location and likelihood of transplantation among pediatric dialysis patients

Pediatric Transplantation

Samuel, S.M. and Hemmelgarn, B. and Nettel-Aguirre, A. and Foster, B. and Soo, A. and Alexander, R.T. and Tonelli, M.

DOI: 10.1111/j.1399-3046.2012.01694.x

Diarrhea-associated hemolytic uremic syndrome in southern Alberta: A long-term single-centre experience

Paediatrics and Child Health

Grisaru, S. and Midgley, J.P. and Hamiwka, L.A. and Wade, A.W. and Samuel, S.M.

DOI: 10.1093/pch/16.6.337

Association between age and graft failure rates in young kidney transplant recipients

Transplantation

Foster, B.J. and Dahhou, M. and Zhang, X. and Platt, R.W. and Samuel, S.M. and Hanley, J.A.

DOI: 10.1097/TP.0b013e31823411d7

Dialysis and transplantation among Aboriginal children with kidney failure

CMAJ. Canadian Medical Association Journal

Samuel, S.M. and Foster, B.J. and Tonelli, M.A. and Nettel-Aguirre, A. and Soo, A. and Alexander, R.T. and Crowshoe, L. and Hemmelgarn, B.R.

DOI: 10.1503/cmaj.101840

Survival in pediatric dialysis and transplant patients

Clinical Journal of the American Society of Nephrology

Samuel, S.M. and Tonelli, M.A. and Foster, B.J. and Alexander, R.T. and Nettel-Aguirre, A. and Soo, A. and Hemmelgarn, B.R.

DOI: 10.2215/CJN.04920610

Graft failure and adaptation period to adult healthcare centers in pediatric renal transplant patients

Transplantation

Samuel, S.M. and Nettel-Aguirre, A. and Hemmelgarn, B.R. and Tonelli, M.A. and Soo, A. and Clark, C. and Alexander, R.T. and Foster, B.J.

DOI: 10.1097/TP.0b013e31821b2f4b

Overview of the Canadian pediatric end-stage renal disease database

BMC Nephrology

Samuel, S.M. and Tonelli, M.A. and Foster, B.J. and Nettel-Aguirre, A. and Na, Y. and Williams, R. and Soo, A. and Hemmelgarn, B.R.

DOI: 10.1186/1471-2369-11-21

Renal allograft loss during transition to adult healthcare services among pediatric renal transplant patients

Transplantation

Koshy, S.M. and Hebert, D. and Lam, K. and Stukel, T.A. and Guttmann, A.

DOI: 10.1097/TP.0b013e3181a63ed9

Screening for kidney disease in children on World Kidney Day in Jalisco, Mexico

Pediatric Nephrology

Koshy, S.M. and Garcia-Garcia, G. and Pamplona, J.S. and Renoirte-Lopez, K. and Perez-Cortes, G. and Gutierrez, Ma.L.S. and Hemmelgarn, B. and Lloyd, A. and Tonelli, M.

DOI: 10.1007/s00467-009-1136-7

Incidence and risk factors for cardiovascular events and death in pediatric renal transplant patients: A single center long-term outcome study

Pediatric Transplantation

Koshy, S.M. and Guttmann, A. and Hebert, D. and Parkes, R.K. and Logan, A.G.

DOI: 10.1111/j.1399-3046.2008.01111.x

Anemia in children with chronic kidney disease

Pediatric Nephrology

Koshy, S.M. and Geary, D.F.

DOI: 10.1007/s00467-006-0381-2

Ambulatory blood pressure monitoring: Mean blood pressure and blood pressure load

Pediatric Nephrology

Koshy, S. and Macarthur, C.Colin and Luthra, S. and Gajaria, M. and Geary, D.

DOI: 10.1007/s00467-005-2014-6

Developing precision approaches to help predict clinical course of nephrotic syndrome and to develop better treatments

Nephrotic syndrome is a rare disease that causes severe swelling of the body due to protein leak from blood into urine. It is a relapsing remitting disease and the most common acquired kidney disease in children. Generating high quality evidence for the management of nephrotic syndrome is difficult due to small numbers of patients in each health centre. We are working with pediatric nephrologists to develop strategies to improve the evidence base in nephrotic syndrome and translation of evidence into practice. We are also working with scientific colleagues to study the immune signature of active nephrotic syndrome. We are building a repository of critical relapse-remission paired bio-samples to help facilitate these studies.

Improving transition to adult care by studying health services based interventions

A major area of focus for our research program is evaluating innovations in transition to adult health care. Although there is much written about the perils of poor transitions, the evidence base guiding implementation of interventions is scant. Building on our work that showed high risk of poor outcomes among transitioned patients, we implemented a randomized controlled trial testing the effectiveness of a patient navigator (a clinician coordinating care after transfer to adult care) to decrease emergency room use, and to improve health outcomes and experience of youth with a chronic health condition (Transition Navigator Trial in Alberta). The study has immediate relevance to policy and practice within Alberta and beyond. Students from our group are working on various aspects of this problem, including understanding youth, caregiver and provider perspectives, in order to increase our understanding of how interventions can be helpful to improve the overall transition experience.

Grants

Co-Applicant. Pathogenesis of idiopathic nephrotic syndrome: defining the role of B cells and autoantibodies reactive to podocyte proteins. Funding Source: CIHR Project Grant

Principal Investigator. Empowering Next-generation Researchers In perinatal and Child Health (ENRICH). Funding Source: CIHR Training grant - Health Research Training Platform (HRTP) Pilot

Co-Principal Investigator. Defining the Immune Dysfunction in Childhood Nephrotic Syndrome: Toward Therapeutic Reversal without Glucocorticoids. CIHR Project Grant

Principal Investigator. Evaluating impact of Primary Care Patient-Provider Relationships on Emergency Department Utilization by Adolescents and Young Adults with Chronic Conditions. Funding Source: CIHR Operating Grant Transitions in Care – Evaluation Grants

Principal Investigator. Evaluating innovations in transition to adult care: The Transition Navigator Trial. Funding Source: CIHR Project Scheme Grant

Honours & Awards

2022 - SILVER LEGO Award for Faculty Teaching Evaluations Performance Report (for period 2017 - 2022)

2021 - Canada Research Chair Tier 1, Precision Medicine and Data Science in Child Health

2018 - CARE Award: Researcher of the Year, Alberta Children's Hospital

2017 - Endowed Research Award in Healthy Living, BMO

2013 - Top 40 Under 40 Award, Avenue Magazine

2011-2015 - Career Development Award, CIHR Canadian Child Health Clinician Scientist Program

2011-2014 - KRESCENT New Investigator Award, Kidney Foundation of Canada/CIHR/Canadian Society of Nephrology

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