Patricia Birch

BSc, MSc

Investigator, Research Manager and Research Nurse, BC Children's Hospital

I am a researcher, educator, manager, and nurse. The common threads throughout my career have been a desire to improve access, equity, and quality of family-centred clinical care; and my interest in the relationship dynamics between consumers and providers of health care.

Currently co-leading various GELS projects relating to genomics, decisional science, health economics, shared decision-making, and family-oriented research. E.g. DECIDE project: an interactive online educational tool and decision aid for families making genomic sequencing choices; SCOPE project: development and testing of a cost calculator for families' costs of caring for a child with developmental disabilities; OPTION project: assessment of the degree which genetic counselors practice shared decision-making.

Academic Affiliations

  • Clinical Associate Professor, , Department of Medical Genetics, Faculty of Medicine, University of British Columbia
  • Research Theme: Evidence to Innovation
  • Research Group(s): Clinical Practice, Outcomes and Innovation; Clinical and Community Data, Analytics and Informatics

Contact Information

Assistant

Liza Mak

liza.mak@ubc.ca

Location

4500 Oak St, Vancouver, BC, Canada, V6H 3N1

Grants

2014-2015

Principal Applicant

“Diagnosing the Causes of Complex Intellectual Disability

a decision support tool for families

Rare Disease Foundation, $3,500

2013-2014

Principal Applicant

DECIDE-Genomics

2013-2015

Co-investigator

Assessing Shared Decision Making in Genetic Counselling of High-Risk Pregnancies

APOGEE/CanGene, $25,000. PI

J.M Friedman

Does Genome-Wide

Sequencing Result in Cost Savings to Healthcare, Families and Society?”

Rare Disease Foundation, $3,500.

2013-2014

Principal Applicant

Costs of Caring for Children with Rare Diseases

Rare Disease Foundation, $3,500

2015-2016

Principal Applicant

What is the prevalence and natural history of optic-and non-optic glioma in adults with neurofibromatosis 1 (NF1)?

Rare Disease Foundation, $3,500

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