What does this study involve?
You will first be asked to complete short questionnaires regarding personal information (e.g., age range, ethnicity, education level) and how much you know about artificial intelligence (AI).
There will also be 3 focus groups (of 1.5–2 hours each). In the first focus group, you will provide opinions and ideas on the design and features of the AI tool. In the second, and third meetings, you will provide feedback on a mock-up of the tool to help guide the final design. You do not have to participate in all three focus groups to be part of the study. Research staff members will take notes and we will record each session, so we can check our notes against transcripts, after which they will be securely deleted.
Individual sessions (30–45 min) will be used to test the performance of the tool, not the participant. To take part in this activity, you should not have taken part in the previous focus groups. These sessions will not be recorded.
How will your identity be protected?
Your confidentiality will be respected. Information that discloses your identity will not be released without your consent, unless required by law. All documents will be identified only by code number and kept in a locked filing cabinet or secure network drives restricted to study team members.
Participants will not be identified by name in any reports of the completed study. All online meetings will be password protected to maintain privacy and security.
How will study results be reported?
The main study findings will be published in academic journal articles. If you are interested in the results of the study, please provide your e-mail address and we’ll share the final report approximately 6 months after project completion.
Will I receive compensation for participating?
Family participants will receive $25 per hour for their expertise, time, and contributions to the project. This will mean up to $50 for each of the three focus groups (up to $150 if you attend all 3 sessions) or up to $25 for the final testing session. You may decline all forms of payment. Clinicians will receive tokens of appreciation ($15 coffee cards).
If in-person sessions are conducted, family participants will also be reimbursed for their parking or transit costs. Upon request, and with pre-approval by the research team, costs for childcare will also be reimbursed. No reimbursement will be provided for clinicians.
Additional questions?
For additional questions about this study, e-mail Dr. Michael D. Wood at michael.wood@bcchr.ca or Dr. Matthias Görges at mgorges@bcchr.ubc.ca.