Julie Robillard

BSc, PhD

Investigator, BC Children's Hospital
Scientist, Patient Experience, C&W
Associate Professor, Division of Neurology, Faculty of Medicine, University of British Columbia

Dr. Julie Robillard is a Scientist in Patient Experience at BC Children’s and Women’s Hospital (C&W) and an Associate Professor of Neurology at the University of British Columbia (UBC). She is a faculty member Neuroethics Canada and an affiliated researcher with the BC Children’s Hospital Research Institute, the Women’s Health Research Institute, the Djavad Mowafaghian Centre for Brain Health, and Vancouver Coastal Research Institute.

Dr. Robillard leads the Neuroscience, Engagement and Smart Tech (NEST) lab at BC Children’s Hospital where she brings her background in neuroscience and biomedical ethics to the evaluation and development of social technologies to support brain health across the lifespan. Together with her team and through international interdisciplinary collaborations, she is exploring co-creation processes, development and applications of social technologies including social robots and social media, and ethical considerations around the implementation of social technologies in brain health care.

Dr. Robillard is passionate about patient engagement and in her role as a Scientist in Patient Experience she is working with a number of groups at C&W and UBC to advance the capture, analysis and improvement of patient experience in both research and care. She is interested in using technology to provide novel means of engagement and patient experience evaluation strategies.

To find out more about Dr. Robillard’s research, please visit the Neuroscience, Engagement and Smart Tech lab website [https://www.nestlab.ca/]

For full list of publications, please see Dr. Robillard's Google Scholar profile [https://bit.ly/robillardgoogle]

Academic Affiliations

  • Associate Professor, , Department of Medicine, Faculty of Medicine, University of British Columbia
  • Research Theme: Brain, Behaviour & Development
  • Research Group(s): Implementing Knowledge for Equity and System Change; Mental Health and Behaviour

Codeveloping a Novel Intervention to Promote the Well-Being of Family Caregivers of Individuals With Spinal Cord Injury: Protocol for a Feasibility Randomized Control Trial

JMIR Research Protocols

Somayyeh Mohammadi and Beth Erlander and Heather Cathcart and Julie M Robillard and Sophia Sauvageau and David G T Whitehurst and Elena Pauly and Brooke Pag and William C Miller

DOI: 10.2196/67709

09 / 2025

Should we preserve our memory using AI? " An exploratory study to examine the acceptance of AI-assisted reminiscence (Preprint)

Bing Ye and Julie M. Robillard and James McDonough and Alex Mihailidis

DOI: 10.2196/preprints.73217

02 / 2025

Use of lecanemab and donanemab in the Canadian healthcare system: Evidence, challenges, and areas for future research

Journal of Prevention of Alzheimer S Disease

Smith, E.E. and Phillips, N.A. and Feldman, H.H. and Borrie, M. and Ganesh, A. and Henri-Bhargava, A. and Desmarais, P. and Frank, A. and Badhwar, A. and Barlow, L. and Bartha, R. and Best, S. and Bethell, J. and Bhangu, J. and Black, S.E. and Bocti, C. and Bronskill, S.E. and Burhan, A.M. and Calon, F. and Camicioli, R. and Campbell, B. and Collins, D.L. and Dadar, M. and DeMarco, M.L. and Ducharme, S. and Duchesne, S. and Einstein, G. and Fisk, J.D. and Gawryluk, J.R. and Grossman, L. and Ismail, Z. and Itzhak, I. and Joshi, M. and Harrison, A. and Kr{\"o}ger, E. and Kumar, S. and Laforce, R. and Lanctot, K.L. and Lau, M. and Lee, L. and Masellis, M. and Massoud, F. and Mitchell, S.B. and Montero-Odasso, M. and Myers Barnett, K. and Nygaard, H.B. and Pasternak, S.H. and Peters, J. and Rajah, M.N. and Robillard, J.M. and Rockwood, K. and Rosa-Neto, P. and Seitz, D.P. and Soucy, J.-P. and Trenaman, S.C. and Wellington, C.L. and Zadem, A. and Chertkow, H.

DOI: 10.1016/j.tjpad.2025.100068

Towards a critical posthumanist perspective on participatory design

Medical Humanities

Prescott, T. and Robillard, J.M. and Murray, S.

DOI: 10.1136/medhum-2024-013078

Designing user-centered policy for social robotics: policy analysis and consultation with the aging and dementia community

Disability and Rehabilitation Assistive Technology

Dosso, J.A. and Martin, S.E. and Ye, H. and Guerra, G.K. and Riminchan, A. and Robillard, J.M.

DOI: 10.1080/17483107.2025.2471050

Brain health PRO/Sant cerveau PRO: The development of a web-based program for dementia literacy and risk factor reduction

Journal of Prevention of Alzheimer S Disease

Belleville, S. and Anderson, N.D. and Bherer, L. and Camicioli, R. and Carrier, J. and Chan, S. and Cuesta, M. and Dang-Vu, T.T. and Dwosh, E. and Fiocco, A.J. and Ferland, G. and Gilbert, B. and Harris, E. and Itzhak, I. and Jarrett, P. and Kadri, M.A. and Laurin, D. and Liu-Ambrose, T. and McGibbon, C.A. and Middleton, L. and Miller, L. and Nygaard, H.B. and Montero-Odasso, M. and Murphy, K. and Phillips, N. and Pichora-Fuller, M.K. and Robillard, J.M. and Smith, E.E. and Speechley, M. and Trigui, A. and Wittich, W. and Chertkow, H. and Feldman, H.H.

DOI: 10.1016/j.tjpad.2025.100134

The quantified baby: real-world use of infant sleep monitoring technologies and its impact on parent mental health and medical decision-making

Medrxiv

Dosso, J.A. and Teng, K.A. and Roy, K.T. and Robillard, J.M.

DOI: 10.1101/2025.05.26.25328367

Influence of User Personality Traits and Attitudes on Interactions With Social Robots: Systematic Review

Collabra Psychology

Kabaci?ska, K. and Dosso, J.A. and Vu, K. and Prescott, T.J. and Robillard, J.M.

DOI: 10.1525/collabra.129175

Development of a Multimedia Electronic Consent Platform for Biobanking and Research Utilizing Opinions from Children, Teens, and Adults

Biopreservation and Biobanking

Kayda, I. and Ellis, A. and Nguyen, V. and Longstaff, H. and Portales-Casamar, E. and Robillard, J.M. and Virani, A. and McKerrow, A. and Dittrick, M. and Lei, G. and Vercauteren, S.

DOI: 10.1089/bio.2024.0165

"That's me at my best": Perspectives of older adults on involvement in technology research

Medical Humanities

Martin, S.E. and Zhang, C.C. and Tam, M.T. and Robillard, J.M.

DOI: 10.1136/medhum-2024-013030

Social Robot Interactions in a Pediatric Hospital Setting: Perspectives of Children, Parents, and Healthcare Providers

Multimodal Technologies and Interaction

Kabaci?ska, K. and Teng, K.A. and Robillard, J.M.

DOI: 10.3390/mti9020014

Play and Pay: In Pursuit of Win-Win Relief of the Open Access Fee

AJOB Neuroscience

Illes, J. and Robillard, J.M.

DOI: 10.1080/21507740.2025.2474224

Codeveloping a Novel Intervention to Promote the Well-Being of Family Caregivers of Individuals With Spinal Cord Injury: Protocol for a Feasibility Randomized Control Trial (Preprint)

Somayyeh Mohammadi and Beth Erlander and Heather Cathcart and Julie M Robillard and Sophia Sauvageau and David G T Whitehurst and Elena Pauly and Brooke Pag and William C Miller

DOI: 10.2196/preprints.67709

10 / 2024

Parental Perspectives on Pediatric Surgical Recovery: Narrative Analysis of Free-Text Comments From a Postoperative Survey (Preprint)

Jessica Luo and Nicholas C West and Samantha Pang and Julie M Robillard and Patricia Page and Neil K Chadha and Heng Gan and Lynnie R Correll and Randa Ridgway and Natasha Broemling and Matthias Grges

DOI: 10.2196/preprints.65198

08 / 2024

Co-developing a novel intervention to promote wellbeing of family caregivers of individuals with spinal cord injury: Research protocol

medRxiv

Mohammadi, S. and Erlander, B. and Cathcart, H. and Robillard, J.M. and Whitehurst, D.G.T. and Pauly, E. and Pag, B. and Sauvageau, S. and Miller, W.C.

DOI: 10.1101/2024.06.09.24308666

The Return of Biomarker Results in Research: Balancing Complexity, Precision, and Ethical Responsibility

Journal of Alzheimer's Disease

Robillard, J.M. and Masellis, M. and Martin, S.E. and Khachaturian, A.S. and Dixon, R.A.

DOI: 10.3233/JAD-230359

Engaging older adults in the process of aging research: a multimethod study evaluating the experience and efficacy of a citizen advisory group for a dementia risk reduction program

Research Involvement and Engagement

D?Amico, D. and Savundranayagam, M.Y. and Biles, R. and Itzhak, I. and Anderson, N.D. and McKetton, L. and Zou, G. and Yetman, L. and Truemner, J. and Thomas, C. and Sidrak, M. and Sharma, S. and Shajan, S. and Sexton, A. and Sands, J. and Samson, ?. and Robinson, B. and Pauley, C. and Omar, H. and Moniz, L. and Hsiung, R. and Hamilton, A. and Hach{\'e}, J. and Haassenstab, J. and Field, T. and Elhayek, N. and Duchaine, C. and Dodge, H. and Dixon, R. and Cole, L. and Celotto, I. and Blue, K. and Best, S. and Almeida, Q. and Alcock, D. and Wellington, C. and Weaver, D. and Territo, P. and Nygaard, H. and McLaurin, J. and Lanctot, K. and Herrmann, N. and Greenberg, B. and Feldman, H.H. and Gauthier, S. and Soo, P.P. and Mohades, Z. and Heshmati, M. and Callegaro, J. and Henri-Bellamare, C. and Beaudoin, C. and Acosta, R. and Abou-Haider, R. and Das, S. and Evans, A. and Zadra, A. and Yamin, S. and Wittich, W. and Wagner, A. and Verty, L.V. and Tessier, A.-J. and Tcherkezian, T. and Tangkhpanya, F. and Sultana, M. and Sullivan, K. and Speechley, M. and Smith, E.E. and Slack, P. and Julien-Rocheleau, A. and Regan, K. and Raptis, H. and Rajah, M.N. and Pratt, A. and Postuma, R. and Plaks, J. and Piquette, L. and Pichora-Fuller, K. and Phillips, N. and Parolin, E. and Orange, J.B. and Noltie, L.-A.M. and Murphy, K. and Mundadan, R. and Moussard, A. and Moore, A. and Montero-Odasso, M. and Mollayeva, T. and Middleton, L. and Mick, P. and Mehrabi, S. and Marzolini, S. and Marple, R. and Mankasingh, B. and Maltezos, S.S. and Mahalingam, K. and Lorrain, D. and Lorenzini, M.-C. and Liu-Ambrose, T. and Laurin, D. and Quang, K.L.-L. and Klekovkina, E. and Keller, H. and Joundi, R. and Hughes, C. and Huang, S. and Harold, T. and Gr{\'e}goire, C.-A. and Gosselin, N. and Gilbert, B. and Gervais, N. and Ganesh, A. and Galea, L. and Gagnon, J.-F. and Gagnon, C. and Fiocco, A. and Ferland, G. and Falck, R.S. and Fahnestock, M. and Einstein, G. and Dwosh, E. and Dumassais, S. and Desrosiers, C. and Desautels, A. and Dang-Vu, T. and Daneault, V. and Cuesta, M. and Crockett, R.A. and Chertkow, A.C. and Carrier, J. and Campos, J. and Camicioli, R. and Butt, A.J. and Burt, J. and Boulos, M.I. and Bouchard, M. and Bherer, L. and Bethell, J. and Belleville, S. and Aubin, G. and Arsenault-Lapierre, G. and Alrohimi, A. and Ajwani, F. and Winer, S. and Trigui, A. and Sarquis-Adamson, Y. and Lupo, J.-L. and Kamkar, N. and Herold, T. and Durant, J. and Chan, S. and Centen, A. and Brewster, P. and Rockwood, K. and Borrie, M. and Walker, J. and Robillard, J. and Revta, C. and Messer, K. and McGibbon, C. and Lim, A. and Jarrett, P. and Jacobs, D. and Hofer, S. and Furlano, J.A. and Evans, A.C. and Banks, S. and Chertkow, H.

DOI: 10.1186/s40900-024-00643-6

Technology in Dementia Education: An Ethical Imperative in a Digitized World

Journal of Alzheimer's Disease

Martin, S.E. and Tam, M.T. and Robillard, J.M.

DOI: 10.3233/JAD-230612

Personal value of Alzheimer's disease biomarker testing and result disclosure from the patient and care partner perspective

Alzheimer's and Dementia: Translational Research and Clinical Interventions

Patel, K.J. and Yang, D. and Feldman, H.H. and Hsiung, G.-Y.R. and Nygaard, H.B. and Best, J.R. and Dwosh, E. and Robillard, J.M. and DeMarco, M.L.

DOI: 10.1002/trc2.12463

A Systematic Review of the Impacts of Media Mental Health Awareness Campaigns on Young People

Health Promotion Practice

Tam, M.T. and Wu, J.M. and Zhang, C.C. and Pawliuk, C. and Robillard, J.M.

DOI: 10.1177/15248399241232646

Impact of a national dementia research consortium: The Canadian Consortium on Neurodegeneration in Aging (CCNA)

Journal of Alzheimer S Disease

Chertkow, H. and Phillips, N. and Rockwood, K. and Anderson, N. and Andrew, M.K. and Bartha, R. and Beaudoin, C. and B{\'e}langer, N. and Bellec, P. and Belleville, S. and Bergman, H. and Best, S. and Bethell, J. and Bherer, L. and Black, S. and Borrie, M. and Camicioli, R. and Carrier, J. and Cashman, N. and Chan, S. and Crowshoe, L. and Cuello, C. and Cynader, M. and Dang-Vu, T. and Das, S. and Dixon, R.A. and Ducharme, S. and Einstein, G. and Evans, A.C. and Fahnestock, M. and Feldman, H. and Ferland, G. and Finger, E. and Fisk, J.D. and Fogarty, J. and Fon, E. and Gan-Or, Z. and Gauthier, S. and Greenwood, C. and Henri-Bellemare, C. and Herrmann, N. and Hogan, D.B. and Hsiung, R. and Itzhak, I. and Jacklin, K. and Lanct{\^o}t, K. and Lim, A. and MacKenzie, I. and Masellis, M. and Maxwell, C. and McAiney, C. and McGilton, K. and McLaurin, J. and Mihailidis, A. and Mohades, Z. and Montero-Odasso, M. and Morgan, D. and Naglie, G. and Nygaard, H. and O?Connell, M. and Petersen, R. and Pilon, R. and Rajah, M.N. and Rapoport, M. and Roach, P. and Robillard, J.M. and Rogaeva, E. and Rosa-Neto, P. and Rylett, J. and Sadavoy, J. and St George-Hyslop, P. and Seitz, D. and Smith, E. and Stefanovic, B. and Vedel, I. and Walker, J.D. and Wellington, C. and Whitehead, V. and Wittich, W.

DOI: 10.1177/13872877241290990

Debate: Social media content moderation may do more harm than good for youth mental health

Child and Adolescent Mental Health

Zhang, C.C. and Zaleski, G. and Kailley, J.N. and Teng, K.A. and English, M. and Riminchan, A. and Robillard, J.M.

DOI: 10.1111/camh.12689

What Does ChatGPT Know About Dementia? A Comparative Analysis of Information Quality

Journal of Alzheimer's Disease

Dosso, J.A. and Kailley, J.N. and Robillard, J.M.

DOI: 10.3233/JAD-230573

The League: A person-centred approach to the development of social robotics for paediatric anxiety

Health Expectations

Dosso, J.A. and Kailley, J.N. and Robillard, J.M.

DOI: 10.1111/hex.13981

Risk Factors of Post-Traumatic Stress in Pediatric Solid Organ Transplant Recipients

Pediatric Transplantation

Hind, T. and Robillard, J. and Armstrong, K. and Guttman, O. and Blydt-Hansen, T.

DOI: 10.1111/petr.14854

Practical social media recommendations for dementia prevention researchers

Alzheimer's and Dementia: Translational Research and Clinical Interventions

Hrincu, V. and Roy, K.T. and Robillard, J.M.

DOI: 10.1002/trc2.12496

Short Communication: Lived experience perspectives on genetic testing for a rare eye disease

Journal of Community Genetics

Tam, M.T. and Daboub, A. and Lou, H. and Robillard, J.M.

DOI: 10.1007/s12687-023-00677-5

Parental Perspectives on Pediatric Surgical Recovery: Narrative Analysis of Free-Text Comments From a Postoperative Survey

Jmir Perioperative Medicine

Luo, J. and West, N.C. and Pang, S. and Robillard, J.M. and Page, P. and Chadha, N.K. and Gan, H. and Correll, L.R. and Ridgway, R. and Broemling, N. and G{\"o}rges, M. and Chen, J. and Sreepada, R.S. and Wood, M.D. and Loftsgard, K.C. and Portales-Casamar, E. and Morrison, C.

DOI: 10.2196/65198

Ethical Considerations at the Intersection of Social Media and Dementia Prevention Research

Journal of Prevention of Alzheimer's Disease

Hrincu, V. and Zaleski, G. and Robillard, J.M.

DOI: 10.14283/jpad.2024.4

Dementia Doesnt Mean That Life Doesnt Have More Wonderful Things Ahead: A Qualitative Study Evaluating a Canadian Dementia Support Services Program

Canadian Geriatrics Journal

Tam, M.T. and Martin, S. and Jiang, Y.F. and Machado, A. and Robillard, J.M.

DOI: 10.5770/cgj.27.698

Designing a Tabletop SAR as an Advanced HRI Experimentation Platform

ACM International Conference Proceeding Series

Maheux, M.-A. and L{\'e}tourneau, D. and Warren, P. and Panchea, A.M. and Robillard, J.M. and Michaud, F.

DOI: 10.1145/3648536.3648538

Dementia research on Facebook and Twitter: Current practice and challenges

Handbook of Prevention and Alzheimer's Disease

Hrincu, V. and An, Z. and Joseph, K. and Jiang, Y.F. and Robillard, J.M.

DOI: 10.3233/AIAD230025

Social robotics for children: an investigation of manufacturers claims

Frontiers in Robotics and AI

Dosso, J.A. and Riminchan, A. and Robillard, J.M.

DOI: 10.3389/frobt.2023.1080157

Correction: Evaluating the role of social media in providing support for family caregivers of individuals with spinal cord injury (Spinal Cord, (2023), 61, 8, (460-465), 10.1038/s41393-023-00914-1)

Spinal Cord

Cathcart, H.F. and Mohammadi, S. and Erlander, B. and Robillard, J.M. and Miller, W.C.

DOI: 10.1038/s41393-023-00936-9

Companion robots to mitigate loneliness among older adults: Perceptions of benefit and possible deception

Frontiers in Psychology

Berridge, C. and Zhou, Y. and Robillard, J.M. and Kaye, J.

DOI: 10.3389/fpsyg.2023.1106633

Older adult perspectives on emotion and stigma in social robots

Frontiers in Psychiatry

Dosso, J.A. and Kailley, J.N. and Guerra, G.K. and Robillard, J.M.

DOI: 10.3389/fpsyt.2022.1051750

A Safe Space for Sharing Feelings: Perspectives of Children with Lived Experiences of Anxiety on Social Robots

Multimodal Technologies and Interaction

Dosso, J.A. and Kailley, J.N. and Martin, S.E. and Robillard, J.M.

DOI: 10.3390/mti7120118

Identifying Risk Factors, Patient-Reported Experience and Outcome Measures, and Data Capture Tools for an Individualized Pain Prediction Tool in Pediatrics: Focus Group Study

JMIR Perioperative Medicine

Michael D Wood and Nicholas C West and Rama S Sreepada and Kent C Loftsgard and Luba Petersen and Julie M Robillard and Patricia Page and Randa Ridgway and Neil K Chadha and Elodie Portales-Casamar and Matthias Grges

DOI: 10.2196/42341

11 / 2022

Pain management communication between parents and nurses after pediatric outpatient surgery

Journal of Pediatric Nursing

Wu, J.M. and Tam, M.T. and Page, P.M. and Lamb, E.A. and Jordan, I. and Chambers, C.T. and Robillard, J.M.

DOI: 10.1016/j.pedn.2022.03.008

Evaluating the role of social media in providing support for family caregivers of individuals with spinal cord injury

Research Square

Miller, B. and Mohammadi, S. and Erlander, B. and Robillard, J. and Cathcart, H.

DOI: 10.21203/rs.3.rs-2143293/v1

Community and Provider Evaluation of a Canadian Dementia Support Services Program

Canadian Geriatrics Journal

Tam, M.T. and Dosso, J.A. and Robillard, J.M.

DOI: 10.5770/cgj.25.548

What criteria are young people using to select mobile mental health applications? A nominal group study

Digital Health

Kabaci?ska, K. and McLeod, K. and MacKenzie, A. and Vu, K. and Cianfrone, M. and Tugwell, A. and Robillard, J.M.

DOI: 10.1177/20552076221102775

Towards emotionally aligned social robots for dementia: perspectives of care partners and persons with dementia

Alzheimer's and Dementia

Dosso, J.A. and Bandari, E. and Malhotra, A. and Hoey, J. and Michaud, F. and Prescott, T.J. and Robillard, J.M.

DOI: 10.1002/alz.059261

Providing Accessible ReCreation Outdoors-User-Driven Research on Standards: Protocol for Mobile and Web-Based Interviews for Winter Assessments

JMIR Research Protocols

Prescott, M. and Gamache, S. and Mortenson, W.B. and Best, K.L. and Grandisson, M. and Mostafavi, M.A. and Labb{\'e}, D. and Morales, E. and Mahmood, A. and Borisoff, J. and Sawatzky, B. and Miller, W.C. and Bulk, L.Y. and Robillard, J.M. and Routhier, F.

DOI: 10.2196/38715

Cognitive Architecture asaService: Scaffolded Integration ofHeterogeneous Models Through Event Streams

Alejandro Jimenez-Rodriguez and Julie Robillard and Tony Prescott

DOI: 10.1007/978-3-031-20470-8_34

Clinical research in dementia: A perspective on implementing innovation

Alzheimer's and Dementia

Boccardi, M. and Handels, R. and Gold, M. and Grazia, A. and Lutz, M.W. and Martin, M. and Nosheny, R. and Robillard, J.M. and Weidner, W. and Alexandersson, J. and Thyrian, J.R. and Winblad, B. and Barbarino, P. and Khachaturian, A.S. and Teipel, S.

DOI: 10.1002/alz.12622

The impact of respite care from the perspectives and experiences of people with amyotrophic lateral sclerosis and their care partners: a qualitative study

BMC Palliative Care

Wu, J.M. and Tam, M.T. and Buch, K. and Khairati, F. and Wilson, L. and Bannerman, E. and Guerrero, A. and Eisen, A. and Toyer, W. and Stevenson, T. and Robillard, J.M.

DOI: 10.1186/s12904-022-00919-2

Research-based evaluation of a dementia support program through lived experiences

Alzheimer's and Dementia

Tam, M.T. and Jiang, Y.F. and Machado, A. and Robillard, J.M.

DOI: 10.1002/alz.062465

Functioning better is doing better: older adults priorities for the evaluation of assistive technology

Assistive Technology

Kabaci?ska, K. and Vu, K. and Tam, M. and Edwards, O. and Miller, W.C. and Robillard, J.M.

DOI: 10.1080/10400435.2022.2113180

Providing Accessible Recreation Outdoors"User-Driven Research on Standards (PARCOURS): Protocol for a Multiphase Study

JMIR Research Protocols

Prescott, M. and Routhier, F. and Labb, D. and Grandisson, M. and Mahmood, A. and Morales, E. and Best, K.L. and Mostafavi, M.A. and Borisoff, J. and Gamache, S. and Sawatzky, B. and Miller, W.C. and Bulk, L.Y. and Robillard, J.M. and Jenkins, H.-T. and Seetharaman, K. and Mortenson, W.B.

DOI: 10.2196/33611

Committee on High-quality Alzheimer's Disease Studies (CHADS) consensus report

Alzheimer's and Dementia

Jicha, G.A. and Abner, E.L. and Arnold, S.E. and Carrillo, M.C. and Dodge, H.H. and Edland, S.D. and Fargo, K.N. and Feldman, H.H. and Goldstein, L.B. and Hendrix, J. and Peters, R. and Robillard, J.M. and Schneider, L.S. and Titiner, J.R. and Weber, C.J.

DOI: 10.1002/alz.12461

Robot telepresence as a practical tool for responsible and open research in trustworthy autonomous systems

Journal of Responsible Technology

Waterstone, R. and Robillard, J.M. and Prescott, T.J.

DOI: 10.1016/j.jrt.2022.100050

Access to genetic testing for rare diseases: Existing gaps in public-facing information

World Medical & Health Policy

Julie M. Robillard and Tanya L. Feng and Katarzyna Kabacinska

DOI: 10.1002/wmh3.469

09 / 2021

Effectiveness of eHealth Tools for Hip and Knee Arthroplasty: A Systematic Review

Frontiers in Rehabilitation Sciences

Mohammadi, S. and Miller, W.C. and Wu, J. and Pawliuk, C. and Robillard, J.M.

DOI: 10.3389/fresc.2021.696019

The Impact of a Global Pandemic on People Living with Dementia and Their Care Partners: Analysis of 417 Lived Experience Reports

Journal of Alzheimer's Disease

Tam, M.T. and Dosso, J.A. and Robillard, J.M.

DOI: 10.3233/JAD-201114

The Time Is Now: A FASTER Approach to Generate Research Evidence for Technology-Based Interventions in the Field of Disability and Rehabilitation

Archives of Physical Medicine and Rehabilitation

Wang, R.H. and Kenyon, L.K. and McGilton, K.S. and Miller, W.C. and Hovanec, N. and Boger, J. and Viswanathan, P. and Robillard, J.M. and Czarnuch, S.M.

DOI: 10.1016/j.apmr.2021.04.009

Socially Assistive Robots as Mental Health Interventions for Children: A Scoping Review

International Journal of Social Robotics

Kabaci?ska, K. and Prescott, T.J. and Robillard, J.M.

DOI: 10.1007/s12369-020-00679-0

A Global Survey of Patient and Caregiver Experiences throughout Care for Developmental Dysplasia of the Hip

Journal of Pediatric Orthopaedics

Gibbard, M. and Zivkovic, I. and Jivraj, B. and Schaeffer, E. and Robillard, J.M. and Mulpuri, K.

DOI: 10.1097/BPO.0000000000001813

A Qualitative Study on Prehabilitation before Total Hip and Knee Arthroplasties: Integration of Patients and Clinicians Perspectives

Disabilities

Mohammadi, S. and Reid, H. and Watson, W. and Crocker, M. and Robillard, J.M. and Westby, M. and Miller, W.C.

DOI: 10.3390/disabilities1040025

Facilitating recruitment for dementia research: Insights from an international panel (innovative practice).

Dementia (London, England)

Tam MT and Gauthier S and Ng KP and Everett F and Robillard JM

DOI: 10.1177/1471301220981241 PubMed: 33342280

12 / 2020

Pandemic Dementia Scarce Resource Allocation.

Canadian geriatrics journal : CGJ

Smith EE and Couillard P and Fisk JD and Ismail Z and Montero-Odasso M and Robillard JM and Vedel I and Sivananthan S and Gauthier S

DOI: 10.5770/cgj.23.457 PubMed: 32904792

09 / 2020

Barriers and Facilitators to Effective Pain Management by Parents After Pediatric Outpatient Surgery.

Journal of pediatric health care : official publication of National Association of Pediatric Nurse Associates & Practitioners

Tam MT and Wu JM and Page PM and Lamb EA and Jordan I and Chambers CT and Robillard JM

DOI: 10.1016/j.pedhc.2020.06.008 PubMed: 32868162

08 / 2020

New Thinking About Thinking, Part 3. Advice on preparing a successful manuscript for Alzheimer's & Dementia

Alzheimer's & Dementia

DOI: 10.1002/alz.12141

06 / 2020

Are Friends Electric? The Benefits and Risks of Human-Robot Relationships

iScience

Tony J. Prescott and Julie M. Robillard

DOI: 10.1016/j.isci.2020.101993

Improving the paediatric surgery patient experience: An 8-year analysis of narrative quality data

BMJ Open Quality

Robillard, J.M. and Bourne, S.C. and Tam, M.T. and Page, P.M. and Lamb, E.A. and Gogal, C. and Skarsgard, E.D. and Afshar, K.

DOI: 10.1136/bmjoq-2020-000924

Realizing the Potential of Robotics for Aged Care through Co-Creation

Journal of Alzheimer's Disease

Robillard, J.M. and Kabacinska, K.

DOI: 10.3233/JAD-200214

Evaluation Tools for Assistive Technologies: A Scoping Review

Archives of Physical Medicine and Rehabilitation

Tao, G. and Charm, G. and Kabaci?ska, K. and Miller, W.C. and Robillard, J.M.

DOI: 10.1016/j.apmr.2020.01.008

Addressing the Ethics of Telepresence Applications through End-User Engagement

Journal of Alzheimer's Disease

Robillard, J.M. and Goldman, I.P. and Prescott, T.J. and Michaud, F.

DOI: 10.3233/JAD-200154

The French national protocol for Kennedy's disease (SBMA): Consensus diagnostic and management recommendations

Orphanet Journal of Rare Diseases

Pradat, P.-F. and Bernard, E. and Corcia, P. and Couratier, P. and Jublanc, C. and Querin, G. and Morlot Panzini, C. and Salachas, F. and Vial, C. and Wahbi, K. and Bede, P. and Desnuelle, C. and Le Forestier, N. and Echaniz-Laguna, A. and Sorar, G. and Perez, T. and Ramos, C. and Goizet, C. and Desport, J.C. and Pugeat, M. and Pichon, B. and Maniez, S. and Robillard, J. and Coupe, C. and Laurier Betram, L. and Roy Bellina, S. and Lvque, N. and Penot, J. and Goutines Caramel, V.

DOI: 10.1186/s13023-020-01366-z

Emotional alignment between older adults and online personalities: Implications for assistive technologies

PervasiveHealth: Pervasive Computing Technologies for Healthcare

Ghafurian, M. and Hoey, J. and Tchorni, D. and Ang, A. and Tam, M. and Robillard, J.M.

DOI: 10.1145/3421937.3421981

Content Analysis of Frequency of Information About Developmental Dysplasia of the Hip on Twitter

Indian Journal of Orthopaedics

Kodali, N. and Sidhu, B.V. and So, J. and Habib, E. and Robillard, J.M. and Mulpuri, K. and Schaeffer, E.K.

DOI: 10.1007/s43465-021-00553-9

Research-based evaluation of a dementia support program: An analysis of input from 1164 participants

Alzheimer's & Dementia

Mallorie T Tam and Julie Robillard

DOI: 10.1002/alz.041673

Investigating the concept of participant burden in aging technology research

BMC Geriatrics

Kabaci?ska, K. and Sharma, N. and Kaye, J. and Mattek, N. and Kuzeljevic, B. and Robillard, J.M.

DOI: 10.1186/s12877-020-1441-3

Prioritizing benefits: A content analysis of the ethics in Dementia technology policies

Journal of Alzheimer's Disease

Robillard, J.M. and Wu, J.M. and Feng, T.L. and Tam, M.T.

DOI: 10.3233/JAD-180938

Availability, readability, and content of privacy policies and terms of agreements of mental health apps

Internet Interventions

Robillard, J.M. and Feng, T.L. and Sporn, A.B. and Lai, J.-A. and Lo, C. and Ta, M. and Nadler, R.

DOI: 10.1016/j.invent.2019.100243

A Neuroethics Backbone for the Evolving Canadian Brain Research Strategy

Neuron

Illes, J. and Weiss, S. and Bains, J. and Chandler, J.A. and Conrod, P. and De Koninck, Y. and Fellows, L.K. and Groetzinger, D. and Racine, E. and Robillard, J.M. and Sokolowski, M.B.

DOI: 10.1016/j.neuron.2018.12.021

Technology and Dementia: The Future is Now

Dementia and geriatric cognitive disorders

Astell, A.J. and Bouranis, N. and Hoey, J. and Lindauer, A. and Mihailidis, A. and Nugent, C. and Robillard, J.M.

DOI: 10.1159/000497800

Robotic automation can improve the lives of people who need social care

BMJ (Online)

Prescott, T.J. and Robillard, J.M.

DOI: 10.1136/bmj.l62

Social Media Content About Children's Pain and Sleep: Content and Network Analysis.

JMIR pediatrics and parenting

Tougas ME and Chambers CT and Corkum P and Robillard JM and Gruzd A and Howard V and Kampen A and Boerner KE and Hundert AS

DOI: 10.2196/11193 PubMed: 31518292

12 / 2018

Social Media Content About Childrens Pain and Sleep: Content and Network Analysis (Preprint)

Michelle E Tougas and Christine T Chambers and Penny Corkum and Julie M Robillard and Anatoliy Gruzd and Vivian Howard and Andrea Kampen and Katelynn E Boerner and Amos S Hundert

DOI: 10.2196/preprints.11193

05 / 2018

Patient perspectives of the experience of a computerized cognitive assessment in a clinical setting

Alzheimer's and Dementia: Translational Research and Clinical Interventions

Robillard, J.M. and Lai, J.-A. and Wu, J.M. and Feng, T.L. and Hayden, S.

DOI: 10.1016/j.trci.2018.06.003

Static versus interactive online resources about dementia: A comparison of readability scores

Gerontechnology

Robillard, J.M. and Sporn, A.B.

DOI: 10.4017/gt.2018.17.1.003.00

Emotion and Motivation in Cognitive Assistive Technologies for Dementia

Computer

Robillard, J.M. and Hoey, J.

DOI: 10.1109/MC.2018.1731059

The stem cell market and policy options: A call for clarity

Journal of Law and the Biosciences

Zarzeczny, A. and Atkins, H. and Illes, J. and Kimmelman, J. and Master, Z. and Robillard, J.M. and Snyder, J. and Turner, L. and Zettler, P.J. and Caulfield, T.

DOI: 10.1093/jlb/lsy025

The QUEST for quality online health information: Validation of a short quantitative tool

BMC Medical Informatics and Decision Making

Robillard, J.M. and Jun, J.H. and Lai, J.-A. and Feng, T.L.

DOI: 10.1186/s12911-018-0668-9

Use of nonintrusive sensor-based information and communication technology for real-world evidence for clinical trials in dementia

Alzheimer's and Dementia

Teipel, S. and Knig, A. and Hoey, J. and Kaye, J. and Krger, F. and Robillard, J.M. and Kirste, T. and Babiloni, C.

DOI: 10.1016/j.jalz.2018.05.003

Ethical adoption: A new imperative in the development of technology for dementia

Alzheimer's and Dementia

Robillard, J.M. and Cleland, I. and Hoey, J. and Nugent, C.

DOI: 10.1016/j.jalz.2018.04.012

Progress in transnational scientific and ethics review: Commentary on the proposal for a single North American review board for research on dementia

Alzheimer's and Dementia

Gauthier, S. and Robillard, J. and de Champlain, J.

DOI: 10.1016/j.jalz.2017.10.001

Digital technologies as biomarkers, clinical outcomes assessment, and recruitment tools in Alzheimer's disease clinical trials

Alzheimer's and Dementia: Translational Research and Clinical Interventions

Gold, M. and Amatniek, J. and Carrillo, M.C. and Cedarbaum, J.M. and Hendrix, J.A. and Miller, B.B. and Robillard, J.M. and Rice, J.J. and Soares, H. and Tome, M.B. and Tarnanas, I. and Vargas, G. and Bain, L.J. and Czaja, S.J.

DOI: 10.1016/j.trci.2018.04.003

Static vs interactive online resources about dementia: a comparison of readability scores

Gerontotechnology

Robillard, J.M., Sporn, A.B. (2017). Static vs interactive online resources about dementia: a comparison of readability scores. In Press, Gerontotechnology, Accepted December 2017.

12 / 2017

A blueprint for the next generation of ELSI research, training, and outreach in regenerative medicine

npj Regenerative Medicine

Judy Illes and Douglas Sipp and Erika Kleiderman and Shelly Benjaminy and Rosario Isasi and Geoff Lomax and Zubin Master and Jennifer McCormick and Ubaka Ogbogu and Vardit Ravitsky and Julie M. Robillard and Fabio Rossi and Brenda Wilson and Amy Zarzeczny

DOI: 10.1038/s41536-017-0026-z

07 / 2017

Qualitative study of affective identities in dementia patients for the design of cognitive assistive technologies

Journal of Rehabilitation and Assistive Technologies Engineering

Alexandra Knig and Linda E Francis and Jyoti Joshi and Julie M Robillard and Jesse Hoey

DOI: 10.1177/2055668316685038

01 / 2017

When Patient Engagement and Research Ethics Collide: Lessons from a Dementia Forum

Journal of Alzheimer's Disease

Robillard, J.M. and Feng, T.L.

DOI: 10.3233/JAD-161285

Intelligent and affectively aligned evaluation of online health information for older adults

AAAI Workshop - Technical Report

Robillard, J.M. and Alhothali, A. and Varma, S. and Hoey, J.

Communicating about the brain in the digital era

Neuroethics: Anticipating the Future

Robillard, J.M. and Wight, E.

DOI: 10.1093/oso/9780198786832.003.0028

Co-creating emotionally aligned smart homes using social psychological modeling

ACM International Conference Proceeding Series

Robillard, J.M. and Li, A.W. and Jacob, S. and Wang, D. and Zou, X. and Hoey, J.

DOI: 10.1145/3134230.3134242

Who is to blame? Medical hype in the media

Movement Disorders

Robillard, J.M.

DOI: 10.1002/mds.26998

The Online Environment: A Key Variable in the Ethical Response to Complementary and Alternative Medicine for Alzheimer's Disease

Journal of Alzheimer's Disease

Robillard, J.M.

DOI: 10.3233/JAD-150641

A Light Switch in the #Brain: Optogenetics on Social Media

Neuroethics

Robillard, J.M. and Lo, C. and Feng, T.L. and Hennessey, C.A.

DOI: 10.1007/s12152-016-9276-5

Health advice in a digital world: Quality and content of online information about the prevention of Alzheimer's disease

Journal of Alzheimer's Disease

Robillard, J.M. and Feng, T.L.

DOI: 10.3233/JAD-160650

Manipulating memories: The ethics of yesterday's science fiction and today's reality

AMA Journal of Ethics

Robillard, J.M. and Illes, J.

DOI: 10.1001/journalofethics.2016.18.12.msoc1-1612

Quality and content of online information about the prevention of Alzheimer disease

Alzheimer's & Dementia

Julie M. Robillard

DOI: 10.1016/j.jalz.2015.07.151

07 / 2015

Communicating in context: A priority for gene therapy researchers

Expert Opinion on Biological Therapy

Robillard, J.M.

DOI: 10.1517/14712598.2015.1001735

Fueling hope: Stem cells in social media

Stem Cell Reviews and Reports

Robillard, J.M. and Cabral, E. and Hennessey, C. and . Kwon, B.K. and Illes, J.

DOI: 10.1007/s12015-015-9591-y

Scientific and ethical features of English-language online tests for Alzheimer's disease

Alzheimer's and Dementia: Diagnosis, Assessment and Disease Monitoring

Robillard, J.M. and Illes, J. and Arcand, M. and Beattie, B.L. and Hayden, S. and Lawrence, P. and McGrenere, J. and Reiner, P.B. and Wittenberg, D. and Jacova, C.

DOI: 10.1016/j.dadm.2015.03.004

Pericardial lymphangiohemangioma multimodality imaging features and pathologic correlation

Circulation

Robillard, J. and Pena, E. and Veinot, J.P. and Fulop, J. and Dennie, C.

DOI: 10.1161/CIRCULATIONAHA.114.009053

Prevailing public perceptions of the ethics of gene therapy

Human Gene Therapy

Robillard, J.M. and Roskams-Edris, D. and Kuzeljevic, B. and Illes, J.

DOI: 10.1089/hum.2014.030

Scientific validity and ethics of freely accessible online tests for Alzheimers disease

Alzheimer's & Dementia

Julie Robillard and Claudia Jacova and B. Lynn Beattie and Judy Illes

DOI: 10.1016/j.jalz.2013.04.204

07 / 2013

Utilizing social media to study information-seeking and ethical issues in gene therapy

Journal of Medical Internet Research

Robillard, J.M. and Whiteley, L. and Johnson, T.W. and Lim, J. and Wasserman, W.W. and Illes, J.

DOI: 10.2196/jmir.2313

Aging 2.0: Health Information about Dementia on Twitter

PLoS ONE

Robillard, J.M. and Johnson, T.W. and Hennessey, C. and Beattie, B.L. and Illes, J.

DOI: 10.1371/journal.pone.0069861

The diction of addiction at the intersection of law and neuroscience

Addiction Neuroethics: The ethics of addiction neuroscience research and treatment

Robillard, J.M. and Illes, J.

DOI: 10.1016/B978-0-12-385973-0.00011-9

Glutathione restores the mechanism of synaptic plasticity in aged mice to that of the adult

PLoS ONE

Robillard, J.M. and Gordon, G.R. and Choi, H.B. and Christie, B.R. and MacVicar, B.A.

DOI: 10.1371/journal.pone.0020676

Lost in translation: Neuroscience and the public

Nature Reviews Neuroscience

Robillard, J.M. and Illes, J.

DOI: 10.1038/nrn2773-c2

) A link in the ink: mental illness and criminal responsibility in the media

Journal of Ethics in Mental Health

Robillard, J.M., Illes, J. (2011) A link in the ink: mental illness and criminal responsibility in the media. Journal of Ethics in Mental Health 6:1-7.

Untapped ethical resources for neurodegeneration research

BMC Medical Ethics

Robillard, J.M. and Federico, C.A. and Tairyan, K. and Ivinson, A.J. and Illes, J.

DOI: 10.1186/1472-6939-12-9

Exercising our brains: How physical activity impacts synaptic plasticity in the dentate gyrus

NeuroMolecular Medicine

Christie, B.R. and Eadie, B.D. and Kannangara, T.S. and Robillard, J.M. and Shin, J. and Titterness, A.K.

DOI: 10.1007/s12017-008-8033-2

Hippocampal long-term depression mediates acute stress-induced spatial memory retrieval impairment

Proceedings of the National Academy of Sciences of the United States of America

Tak, P.W. and Howland, J.G. and Robillard, J.M. and Ge, Y. and Yu, W. and Titterness, A.K. and Brebner, K. and Liu, L. and Weinberg, J. and Christie, B.R. and Phillips, A.G. and Yu, T.W.

DOI: 10.1073/pnas.0702308104

Non-beating HL-1 cells for confocal microscopy: Application to mitochondrial functions during cardiac preconditioning

Progress in Biophysics and Molecular Biology

Pelloux, S. and Robillard, J. and Ferrera, R. and Bilbaut, A. and Ojeda, C. and Saks, V. and Ovize, M. and Tourneur, Y.

DOI: 10.1016/j.pbiomolbio.2005.06.009

Regulation of rat mesencephalic GABAergic neurones through muscarinic receptors

Journal of Physiology

Michel, F.J. and Robillard, J.M. and Trudeau, L.-?.

DOI: 10.1113/jphysiol.2003.057737

Related News

Every day, our researchers work towards breakthroughs to transform the lives of kids in BC and around the world. Learn about our latest innovations and advancements in child health.

Our Research

At BC Children’s, we are making discoveries that save lives and transform health care for children in our province and around the world. Our research portfolio includes basic, clinical, population, and public health research.

EXPLORE OUR RESEARCH

Stay in the Know

Sign up for compelling stories about innovative science, the doctors and researchers who turn ideas into discoveries and treatments, and the kids and families whose lives are changed.

This field is for validation purposes and should be left unchanged.