The registry aims to:

1)    Develop an international, prospective DDH registry that encompasses the entire diagnostic spectrum, with follow-up to skeletal maturity. Specific aims:

  • To identify area variation in screening, diagnosis and management protocols
  • To compare characteristics and outcomes of early- and late-presenting cases
  • To compare brace treatment outcomes within and across diagnostic categories
  • To compare surgical treatment outcomes within and across diagnostic categories
  • To determine the optimal timing of both bracing and surgical treatment
  • To identify and characterize risk factors for treatment complications (i.e. AVN)
  • To determine predictors of the need for hip reconstructive surgery in adolescence

2)    Develop targeted, hypothesis-testing studies within the broader scope of the registry:

  • An assessment and analysis of risk factor screening and monitoring protocols for DDH by a non-inferiority randomized controlled trial (RCT)
  • A comparison of rigid versus dynamic bracing in early treatment of DDH by RCT
  • A comparison of observation versus bracing in clinically stable, ultrasonographically dysplastic hips by RCT
  • An analysis of the impact of brace treatment length after hip stabilization by RCT

3)    Clinical Care

  • To globally improve screening, diagnosis, and management practices for DDH
  • To reduce the number of walking-age DDH diagnoses
  • To investigate the variability in screening, diagnosis, treatment, and current practice patterns for DDH in health care systems around the world
  • To create resource-specific DDH care pathways to be used in varying health care systems (Please see CAREMAP LINK to learn more)
  • To standardize DDH clinical care practices in health care systems of the Global North

4)    Education

  • To create and provide information and learning platforms for primary care physicians, orthopaedic surgeons, and other  health care professionals in regards to DDH screening, diagnosis, management, and treatment practices
  • To generate and share the best clinical practice guidelines as determined by registry data
  • To utilize registry data for global education sessions on DDH screening, diagnosis, management, and treatment
  • To create and provide global education exchange programs for residents and trainees 

5)    Advocacy

  • To promote general public awareness of DDH as a significant pediatric condition
  • To provide a platform for patients and families to have a voice in clinical and research priorities of DDH
  • To improve screening and resource management in resource-poor health care systems