Do you have questions about mental illness and 22q?

We’ve developed an educational resource for parents of individuals with 22q, and we’d like to see whether it’s helpful for people. We’re asking parents to fill out some before- and after- surveys, and check out the resource for themselves.
If you’d like to be involved, please click on the button below for more information and to access the study.

22q Resource Study

Did you participate in our postpartum depression study? We are conducting a follow-up study with the children who were born during that study!

We want to know what factors influence children’s development and mental health, and are following up with these kids at the ages of 5 and 10, and beyond! Keep an eye on your inbox for more information if your child is approaching one of these ages. Thanks to all the moms and kids who have participated so far!

If you have any questions please contact Caitlin at

Study exploring the experiences of adolescents with genetic conditions

Do you have a genetic condition? Are you between 10-19 years old? If so, we would like to hear about your experiences of being a teenager with a genetic condition! Participating in this study involves ~1-hour interview with a researcher and answering a few short questionnaires.

If you and your caregivers would like more information about the study, please contact, who is doing a PhD that is co-supervised by Jehannine, and Dr. Alison Elliott of GenCOUNSEL.

Have you had PRS testing?

If you have had PRS testing through, please visit the site and view some of your PRS scores again, and an invitation will pop up to participate in one of our studies about why you sought testing, and how you understand and react to the results.

Can Meeting with a Genetic Counselor Help Me?

  • Do you have questions about a genetic condition that runs in your family? 
  • Are you worried about a genetic health condition and haven't had all of your questions answered? 
  • Are you considering genetic testing, but aren't sure what to do? 
  • Do you have difficulty talking about a genetic condition with your family members? 
  • Are you concerned or confused about how a genetic condition in you or your family members could impact your future children? 
  • Have you been told you may have a genetic condition, and aren't sure what questions to ask? 

Learning that you or a family member has a genetic condition can cause stress, worry or leave you with unanswered questions.  A genetic counselor, with their specialized training in genetics and counseling, can help you as you work through the information, conversations and decisions that may result from learning a condition runs in your family.
If you think you may benefit from additional support, click on the button below to use our tool to answer a few questions and learn whether a genetic counselor could help you and your family.

Genetic counseling questionnaire