Do you have questions about mental illness and 22q?

We’ve developed an educational resource for parents of individuals with 22q, and we’d like to see whether it’s helpful for people. We’re asking parents to fill out some before- and after- surveys, and check out the resource for themselves.
If you’d like to be involved, please click on the button below for more information and to access the study.

22q Resource Study

Did you participate in our postpartum depression study? We are conducting a follow-up study with the children who were born during that study!

We want to know what factors influence children’s development and mental health, and are following up with these kids at the ages of 5 and 10, and beyond! Keep an eye on your inbox for more information if your child is approaching one of these ages. Thanks to all the moms and kids who have participated so far!

If you have any questions please contact Caitlin at

Study exploring the experiences of adolescents with genetic conditions

Do you have a genetic condition? Are you between 10-19 years old? If so, we would like to hear about your experiences of being a teenager with a genetic condition! Participating in this study involves ~1-hour interview with a researcher and answering a few short questionnaires.

If you and your caregivers would like more information about the study, please contact, who is doing a PhD that is co-supervised by Jehannine, and Dr. Alison Elliott of GenCOUNSEL.

Have you had PRS testing?

If you have had PRS testing through, please visit the site and view some of your PRS scores again, and an invitation will pop up to participate in one of our studies about why you sought testing, and how you understand and react to the results.