Research Team | BC Children’s Hospital Research Institute

Who we are

Researchers at BC Children's Hospital Research Institute are working with industry partners from Careteam, Secure Key, IDENTOS and Smile CDR to conduct the BC Children's Type 1 Diabetes (T1D) TrustSphere Pilot, including the development of the BC Children's Hospital Care Hub app and assessment of the ability of the Care Hub app to provide the benefits of data-driven, digital healthcare, in the hopes that it will empower patients to improve how they manage their health, wellness and care journey.

TrustSphere Project Leads

Shazhan Amed, MSc, MD

Project Lead

Clinical Professor & Head, Division of Endocrinology, Department of Pediatrics, UBC; Founder & Lead, Live 5-2-1-0, BC Children's Hospital

Wyeth Wasserman, PhD

Project Co-lead

Professor, Department of Medical Genetics, UBC; Vice-President Research, BC Children's Hospital; Associate Dean (Research), BC Children's Hospital Research Institute, Faculty of Medicine, UBC; Senior Scientist, Centre for Molecular Medicine and Therapeutics

TrustSphere Research Working Group Members

Fatema Abdulhussein, MD, FAAP, FRCPC

Clinical Instructor, Staff Pediatric Endocrinologist, BC Children’s Hospital

Elizabeth Borycki, RN, HBScN, MN, PhD

Professor, School of Health Information Science & Director, Global Laboratory for Digital Health Innovation, University of Victoria

MSFHR Health Professional Investigator; Co-lead, NSERC Visual and Automated Disease Analytics (VADA); Vice and Founding Chair, WG Health Informatics for Patient Safety (IMIA)

Matthias Görges, MSc, PhD

Co-Lead, Clinical & Community Data, Analytics & Informatics, Evidence to Innovation, BC Children's Hospital

Assistant Professor, Department of Anesthesiology, Pharmacology & Therapeutics, Faculty of Medicine, University of British Columbia

L Kit Johnson, BSc, MBA

Provincial Director, Clinical Service Innovation and Quality, Child Health BC

Andre Kushniruk, BSc, BA, MSc, PhD

Director and Professor, School of Health Information Science, University of Victoria

Holly Longstaff, PhD

Director, Privacy and Access, PHSA Research and New Initiatives, PHSA

Elodie Portales-Casamar, PhD

Director, Research Informatics, BC Children's Hospital Research Institute
Clinical Assistant Professor, Division of Allergy & Immunology, Department of Pediatrics, UBC

Tibor van Rooij, PhD

Lead, Digital Health Research initiative, BC Children's Hospital Research Institute
Adjunct Professor, Department of Computer Science, UBC

Bruce Verchere, PhD

Professor, Departments of Surgery and Pathology & Laboratory Medicine, UBC; Irving K Barber Chair in Diabetes Research; Director, Centre for Molecular Medicine and Therapeutics

Alice Virani, PhD

Director, Ethics Service, Provincial Health Services Authority (PHSA); Clinical Assistant Professor, Department of Medical Genetics, UBC

TrustSphere Postdoctoral Fellows

Anila Virani, PhD

Postdoctoral Fellow – UI/UX

Yoelit Lipinsky, PhD

Postdoctoral Fellow – Ethics

J. Quetzalcóatl Toledo-Marín, BSc, MSc, PhD

Postdoctoral Fellow – Data Sharing

Taqdir Ali, PhD

Postdoctoral Fellow – Data Architecture
TrustSphere Project Staff

TrustSphere Project Staff

Susan Pinkney, MA

Senior Clinical Research Coordinator

Bonnie Barrett

Project Manager

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We believe there’s nothing we can’t do with your support. It can take years to turn scientific breakthrough into new interventions and treatments. Funding helps speed the pace of change. When given the resources, we can bring transformative therapies – and hope – out of the laboratory and into the clinic to save and improve children’s lives.

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