PAASS: Physical Activity and Aortic Stiffness Study
Relationship between physical activity and clinical measures of heart health in children and adolescents with congenital heart disease diagnoses over the course of two years.
- Who can participate?
Boys and girls 9-16 years old who have been diagnosed with Tetralogy of Fallot, Coarctation of the Aorta, or Transposition of the Great Arteries, or who have a Fontan circulation.
A QuESTT: Activity, Quality of life and Executive function Study in Teens and Tykes
Explores possible links between physical activity, quality of life and executive function (high-level thinking and planning skills) in children with congenital heart disease, over the course of two years.
- Who can participate?
Boys and girls ages 5-16 with congenital heart disease, who do not have a syndromic diagnosis and are able to participate in physical activities and answer questions about their lives
Twin Study
Investigates the influences of congenital heart disease (CHD) and environmental factors on children’s physical activity, quality of life and executive function (high level thinking and planning skills). Children complete accelerometry, questionnaires, and interviews. Parents complete questionnaires and interviews. This study occurs over the course of up to 5 years.
- Who can participate?
Boys and girls ages 5-19 years old who are twins (identical or fraternal), where one child has CHD and the other is heart healthy, where both children are able to participate in physical activities and answer questions about their lives.
Fontan Liver Injury Registry
Prospective registry that collects information from clinical assessments and medical records to better understand the impact of the Fontan Circulation on liver health.
- Who can participate?
Boys and girls of any age who have had a Fontan procedure, or will have a Fontan procedure.
Fontan Chronic Kidney Damage Registry
Investigates the impact of the Fontan Circulation on kidney health by collecting information from medical records and from participant urine samples.
- Who can participate?
Boys and girls 13 years and older who have had a Fontan procedure.
SEARCH: Study Evaluating Adolescents for Risk factors associated with Cardiovascular Health
A questionnaire study to evaluate cardiac risk factors and lifestyle choices including diet and physical activity in teens with and without congenital heart disease and their parents.
- Who can participate?
Boys and girls 8-19 years old with a cardiac diagnosis or a healthy heart, who are able to answer questions about their physical activity and lifestyle habits
"CPR Anytime" - Training for Families
Provides timely, and cost effective resuscitation training via the CPR (Cardiopulmonary resuscitation) Anytime Kit to the families that require this training.
- Who can participate?
Congenital heart disease surgical candidates ages 8-18 years old, with inherited arrhythmia or cardiomyopathy.
Intervention for Improving Executive Function in Children with Congenital/Acquired Heart Disease
Investigates an innovative Executive Function (EF) intervention (Dino Island) in children with congenital/acquired heart disease by measuring EF, academic outcomes and brain activity pre and post intervention.
- Who can participate?
Children (age 4-7 years) with Congenital/Acquired Heart Disease, their parents and teachers.
Physical Activity Counselling for Children with Congenital Heart Disease (PACCC) Study
This study aims to test if a physical activity counselling program can help children with congenital heart disease be more active. This also aims to generate pilot data that will help test the intervention and determine if it works.
- Who can participate?
Children ages 9-12 years old who have been diagnosed with Tetralogy of Fallot, Coarctation of the Aorta, or Transposition of the Great Arteries, or who have a Fontan circulation.
Please contact us at cardioresearch@bcchr.ca or 604-875-2345 (ext. 6186) for more information, or if you think you or your child might be interested in participating.