PAASS: Physical Activity and Aortic Stiffness Study
Relationship between physical activity and clinical measures of heart health in children and adolescents with congenital heart disease diagnoses over the course of two years.

  • Who can participate?
    Boys and girls 9-16 years old who have been diagnosed with Tetralogy of Fallot, Coarctation of the Aorta, or Transposition of the Great Arteries, or who have a Fontan circulation.

A QuESTT: Activity, Quality of life and Executive function Study in Teens and Tykes
Explores possible links between physical activity, quality of life and executive function (high-level thinking and planning skills) in children with congenital heart disease, over the course of two years.

  • Who can participate?
    Boys and girls ages 5-16 with congenital heart disease, who do not have a syndromic diagnosis and are able to participate in physical activities and answer questions about their lives

Twin Study
Investigates the influences of congenital heart disease (CHD) and environmental factors on children’s physical activity, quality of life and executive function (high level thinking and planning skills). Children complete accelerometry, questionnaires, and interviews. Parents complete questionnaires and interviews. This study occurs over the course of up to 5 years. 

  • Who can participate?
    Boys and girls ages 5-19 years old who are twins (identical or fraternal), where one child has CHD and the other is heart healthy, where both children are able to participate in physical activities and answer questions about their lives. 

Fontan Liver Injury Registry
Prospective registry that collects information from clinical assessments and medical records to better understand the impact of the Fontan Circulation on liver health. 

  • Who can participate?
    Boys and girls of any age who have had a Fontan procedure, or will have a Fontan procedure.

Fontan Chronic Kidney Damage Registry 
Investigates the impact of the Fontan Circulation on kidney health by collecting information from medical records and from participant urine samples.

  • Who can participate?
    Boys and girls 13 years and older who have had a Fontan procedure.

SEARCH: Study Evaluating Adolescents for Risk factors associated with Cardiovascular Health
A questionnaire study to evaluate cardiac risk factors and lifestyle choices including diet and physical activity in teens with and without congenital heart disease and their parents.

  • Who can participate?
    Boys and girls 8-19 years old with a cardiac diagnosis or a healthy heart, who are able to answer questions about their physical activity and lifestyle habits

Please contact us at cardioresearch@bcchr.ca or 604-875-2345 (ext. 6186) for more information, or if you think you or your child might be interested in participating.