2021

  1. Wainstein T, Marshall SK, Ross C, Virani A; GenCOUNSEL Study, Austin JC, Elliott AM. Adolescents’ experiences of genetic counseling, testing, and diagnosis: a scoping review. JAMA Peds (in press).

  2. Enns EA, Wainstein T, Dragojlovic N, Kopac N; GenCOUNSEL Study, Lynd LD, Elliott AM. Far and Wide: Exploring provider utilization of remote service provision for genome-wide sequencing in Canada. Mol Genet Genomic Med [link]

  3. Borle K, Dey A, Carrion P, Slomp C; GenCOUNSEL Study, Austin J, Elliott AM. COVID-19 and Genetic Counselling Research: A Lesson in Resiliency.  J Genet Couns 2021 Sep 12. [link]

  4. Speaking the same language: why linguistic equity is key to making genomic medicine accessible. Rhea Beauchesne, GenCOUNSEL Project. Rare Revolution Magazine, Issue 20, Pages 56-59. July 26, 2020. [link]

  5. Lambert, D. M., Patrinos, D., Knoppers, B. M., & Zawati, M. H. (2021). Genetic counselors and legal recognition: A made-for-Canada approach. J Genet Couns, 00, 1– 10.  [link]

  6. Liang N, Adam S, Elliott AM, Siemens A, du Souich C; CAUSES Study; GenCOUNSEL Study, Friedman JM, Birch P. Beyond the diagnostic odyssey:  After Genomic Results: Parents’ Long-Term Views. J Genet Couns. 2021 Jun 24. [link]

  7. Grant P, Langlois S, Lynd L; GenCOUNSEL Study, Austin J, Elliott AM. Out-of-pocket pay in clinical genetic testing: a scoping review. Clin Genet. 2021 Jun 3. [link]

  8. Dragojlovic N, Kopac N, Borle K, Tandun R, Salmasi S, Ellis U, Birch P, Adam S, Friedman J, GenCOUNSEL Study, Elliott AM, Lynd LD.  Utilization of clinical genetics services in high-income countries: A scoping review. Health Policy. 2021 Apr 18.[link]

2020

  1. Dragojlovic N, Borle K, Kopac N, Ellis U, Birch P, Adam S, Friedman JM, Nisselle A; GenCOUNSEL Study, Elliott AM, Lynd LD. The composition and capacity of the clinical genetics workforce in high-income countries: a scoping review. Genetics in Medicine. 2020 Sep;22(9):1437-1449. doi: 10.1038/s41436-020-0825-2. Epub 2020 Jun 24. Erratum in: Genet Med. 2020 Jul 10; [link]
  2. Dimitri Patrinos, Roxanne Caron, Bartha M. Knoppers, GenCOUNSEL Study, Ma'n H. Zawati, “Genetic Counsellors,Legal Recognition and the Road Less Travelled.” (2020) McGill Journal of Law and Health. [link]
  3. Aldridge, CE, Osiovich, H, (Hal) Siden, H, Elliott, AM; RAPIDOMICS Study; GenCOUNSEL Study. Rapid genome‐wide sequencing in a neonatal intensive care unit: A retrospective qualitative exploration of parental experiences. Journal of Genetic Counseling. 2020; 00: 1– 14. [link]
  4. Courtney B. Cook, Nick Dragojlovic, Angela Siemens, Shelin Adam, Christèle du Souich, Clara van Karnebeek, Anna Lehman, Tanya N. Nelson, Jan Friedman, Larry D. Lynd, Alison M. Elliott, Integration of genetic counsellors in genomic testing triage: Outcomes of a Genomic Consultation Service in British Columbia, Canada, European Journal of Medical Genetics, 2020, 104024, [link]